6 months 1 week ago - 6 months 1 week ago#55374by Alan
Welcome the group. BCG side effects manifest in many ways. Nausea, bladder spasms, malaise, urgency, frequency, fatigue and on and on. With your mentioning a compromised auto immune system I would definitely let your URO know if you haven't and perhaps have an disease specialist be on top of it. I believe leg cramps also have been pegged as a possible side effect. The good news is this is better than having to take chemo plus this is treatable and beatable! Keep posting as you continue this journey, someone should be around to see your posts.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
In March I was diagnosed with noninvasive bladder cancer following cystoscopy and TURBT. During TURBT also received mytomyicin C. I have just completed 4 of 6 BCG intravesical treatments and have increasing muscle pain in legs and pain in feet. Has anyone else experienced this? I do have other autoimmune issues and went of prednisone to start BCG.