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Neobladder

6 days 11 hours ago #55681 by swillis
Hello. I had my bladder removed last July 2017. I was given the option only for a ileostomy conduit (stoma)/urostomy bag. I am consulting with a urologist tomorrow to discuss converting to a neobladder. Any women in here that have had a neobladder? Pros/cons? Thank you!

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2 months 1 day ago #55416 by Mayah
Actually have to go to UCSF because of insurance. Dr. Max Meng may have done as many if not more neobladders on women. Yeah - it's nice to have a woman doctor though.

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2 months 1 day ago #55407 by sara.anne
In my personal opinion there is no contest here. Stanford by far. The chairman of the urology department is a woman who specializes in bladder cancer and is world-reknown

https://urology.stanford.edu/faculty.html

Since women have more problems with neobladders you want only the best surgeon possible. Fortunately you are
located in the right place!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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2 months 1 day ago #55406 by Mayah
Newly diagnosed with stage 2 high grade bladder cancer. I’m an active 65 yr woman. Thinking of neobladder and would like to hear more experiences from women with neobladder. Recommendations for surgeons in San Francisco Bay Area? UCSF? Stanford? Both about the same?

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2 months 2 days ago #55401 by sara.anne
Please read my reply to ICStinks (right below your post) if you haven't. You mention that you are being seen by two "specialists"but didn't mention who they are or where they are. I am surprised that two "specialists" would recommend a neobladder for you.

That being said, we are not really familiar with IC here, as our focus is bladder cancer. You might find better answers to your questions at a site that specializes in IC such as
https://www.ichelp.org/

Wishing you the best

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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2 months 2 days ago #55399 by Harley96
Hello!
Looking for a bit of advice.
I am 21 years old and I’ve recently been having a lot of bladder problems. Very similar to interstitial cystitis although waiting on biopsy results to rule out anything more sinister. I am currently managing some of my symptoms by using an indwelling urethral catheter however the two specialists treating me are keen to try neobladder surgery.
If anyone has had the surgery or knows a lot about it, I would be interested in knowing the benefits and negatives of the surgery. As I am very young to be having major surgery like this I would also like some information about how it would affect me for the rest of my life.

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