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Recently Diagnosed High Grade T1

7 months 1 week ago #55291 by sara.anne
BCG is usually only given after the first occurrence when the diagnosis is high grade. Low grade cancer is initially treated by removal of the tumor and frequent cystoscopy exams. BCG is more effective in high grade where the cells are rapidly dividing. Also, while BCG is relatively safe, it is not without side effects which are cumulative with increasing exposure, so it is best used when really needed.

If, however, low grade bladder cancer returns multiple times, BCG is often used.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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7 months 1 week ago #55290 by richard_lv
Sara, any idea why my dad didn't have BCG? I didn't ask doctor about it as I know so little. Was it because he had T1G2 (medium grade)?

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7 months 1 week ago #55287 by ruliving
Thank you Tim, you mentioned that you had them every 3 months. Do you mind sharing how long you've been doing this? And, have you had to have bcg maintenance .
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7 months 1 week ago #55286 by TimODell
Just be sure to follow up have a cystocopy done as your Dr. will request I have had them every 3 months along with biopsy if Dr. seen something suspicious.

2 Time Bladder cancer survivor here to help others.
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7 months 2 weeks ago #55231 by sara.anne
Of course you are being realistic! Many of us have had high grade, done the BCG (and very important, the BCG maintenance) and have not had a recurrence.

Wishing you the best!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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7 months 2 weeks ago #55229 by ruliving
Diagnosed in Feb 2018 - Surgery to remove cancer in back in March / Tumors were completely resected / stent placed and removed / and 6 weeks of BCG

Looking forward to a clean bill of health in July so I can put this behind me.

Am I being realistic here?


Papillary Urothelial Carcinoma / High Grade
Lamina Propria Invasion is present (pT1)
Deep muscle is present and not involved

TURBT - Two Tumors 5+ CM removed and just finished 6 BCG Treatments.

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