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Just diagnosed with Small cell bladder cancer

1 week 4 days ago #55321 by Lwsb1
I also had small cell and diagnosed December 2015. Chemo 6 rounds etopiside cisplatin. Mine was a T3 - RC/IC in June 2016. First year ct scans every 3 months and 2nd year every 4 months. I am NED and feeling very good. You are going to very good hospitals. My best to you.
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3 weeks 1 day ago #55264 by sara.anne
If I read your posts correctly, your dad had urethelial carcinoma, which arises out of the tissue of the bladder lining. This is the most common type that most of us have. By the way, “carcinoma” is just a fancier way of saying “cancer” and refers to any kind of cancer. The terminology can get confusing.

If you go to our Home Page, at the upper left is a menu box all about bladder cancer. If you click at the bottom it expands and you will find lots of information including a description of the many different types of bladder cancer there are.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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3 weeks 1 day ago #55263 by richard_lv
Thanks Sara and Sandie. I didn't realize small cell bladder cancer is different from carcinoma.

(Also a quick update about my dad, we are only getting 2nd TURBT results on Monday. Doctor was out of office and we couldn't meet him. As soon as I have final results, I'll post a new thread.)
The following user(s) said Thank You: SandieLegal

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3 weeks 1 day ago #55261 by sara.anne
Richard, Sandie’s case is very different from your dad’s. She has small cell bladder cancer which is a totally different situation and requires different treatments.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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3 weeks 1 day ago #55260 by SandieLegal
Radiologist Oncologist Dr Blanchard (from Mayo) now at the Roger Maris Cancer Center in Fargo ND was my doctor (hero) preparing for a radical Cystectomy making appointments with specialists for a chance a a neobladder when they decided to do 30 radiation treatments and I had five chemo sessions that were 3 consecutive days. I feel very fortunate and have read about several cases of small Cell not having the cystectomy.
I am more then willing to share any information I can with you at any time!
Sandie

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3 weeks 1 day ago #55259 by richard_lv
SandieLegal, can you please tell us more about how you kept your bladder with T2 and T3? I would love to know just to be ready for future. (My dad had T1 but as recurrence rates are high it may come back and go to T2 or T3, and I want to be ready and suggest best decisions for my dad armed with a lot of information.)

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