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VA and Bladder Cancer

8 months 1 week ago - 8 months 1 week ago #55012 by jimswife
Hi, Mystrik I’m the contact Cynthia has mentioned to you. I may I help you. I have a number of questions to ask you so I can best assist you. Please send us a messege using the contact us in the main menu. Hope to hear from you. Jimswife

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8 months 1 week ago #55011 by mystri
Thanks Cynthia. I have already learned a lot by reading several posts. Hopefully as I proceed through the process I can add something that can help others. Glad I found ABCS or glad my wife found you. Looking forward to learning and sharing.
Mystri

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8 months 1 week ago - 8 months 1 week ago #55010 by Cynthia
Mystri, I have sent an email to a person here who knows a bit about the VA/agent orange situation. If they are not on vacation I am sure we should hear from them soon. I am not an expert and if I talk about it you just get talk of frustration and hear words like moronic and the such. I am sure that you would rather have information. Keep us updated and don’t be a stranger.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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8 months 1 week ago #55008 by mystri
I wish I could give you the magic formula, but cannot. I can only tell you that in the process of completing another claim with them, it was part of the award letter. I do know they requested a copy of my DD214 (even though it is part of my VA record) which indicates all overseas assignments and can only assume they picked up on it. Sorry I can't be of more help.

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8 months 1 week ago #55007 by raharris3
How did you get that letter from VA?

Bob H

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8 months 1 week ago #55006 by mystri
I know this can't be a "new topic" but I can't find a specific forum? Is there one? I am retired Air Force, 3 tours in Viet Nam and several "ins and outs" TDY etc. Retired in 1981 and they are just now finding I have Stage 2, high grade bladder cancer. In going through the screening process at my local Urologist office and at MD Anderson Cancer Center in Houston, the same questions keep popping up, how long have you smoked (never), how much alcohol do you consume (maybe a beer a month) etc. I have a letter from the VA that states "determined to be a Vietnam-era herbicide exposed Veteran". I have filed a claim (knowing full well that this had not been approved as a presumptive disability, but has been identified as one of four that should be) and the VA keeps asking for more more more. So where is everybody in this process?
Thanks and look forward to engaging others in the same situation.

mystri

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