6 years 6 days ago - 6 years 6 days ago #54943
by CatherineH
Hello and welcome to the forum. I also had a primary adenocarcinoma of the bladder in 2010. My experience was different than yours in that mine was located in the dome. I was fortunate to be a good candidate for a partial cysectomy due to location and smaller size of the tumor. It is very good that you have done some research to better understand your diagnosis and asked for a second pathology review. I was also very frustrated at the time by the lack of information out there when I was first diagnosed.
Sounds like you have excellent medical options available in your area. As Sara Anne said, a second opinion of your case and treatment plan may help you feel more confident in the path you decide on. It is important to have a very experienced surgeon and speak up to get your questions answered and concerns addressed. If the final treatment decision is to have a radical cystectomy, there is a lot of experience here to answer those pre and post surgery questions. I’m sorry I can’t be more helpful.
Best wishes... Catherine
TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
Last edit: 6 years 6 days ago by CatherineH.
The following user(s) said Thank You: cmooresailors
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