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1 year 10 months ago #54689 by exsequor
It's good to drink 1-2 glasses of it a day, based on what I know of our bodies, and even what Dr Wilson told me about her knowledge on it. It isn't a cure all, but little things if they are correct can help. You have to know your bodies internal pH first. Anyways, this isn't a holistic healing lesson, I was just putting it out there.

During my treatments so far I have drank mostly Kroger 16.8oz bottles of water I buy in 32 packs for 3/$10
I drink 60-200oz of fluids a day (average 120oz). I don't know what everyone elses intakes are but I'm sure they're high. Bladder cancer sort of encourages you to consume more water IMO.

Heavy Wine Hematuria: 7/28/2017
Original DX: LG/NMIBC 1.7x1.5x2cm
1st TURB on 9/12/17
1st Pathology Results on 9/25/17
1st Scope Recheck on 1/12/18
2nd TURB on 1/23/18
2nd Pathology on February 2/13/18 (TBD)

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1 year 10 months ago #54687 by sara.anne
Alkaline water is another scam meant to prey on people who are having health issues or who think they are. Normal water is neutral or barely acidic so someone decided that it would be better to drink something different and came up with water that is slightly alkaline. Since our stomachs are quite acidic ( it is part of the digestive process) a small amount of water that is alkaline would be neutralized as soon as it hit the stomach. A lot of alkaline substances would cause alkalosis and other bad side effects.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 10 months ago #54686 by mamalou1962
What is “ alkaline water” ?

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1 year 10 months ago #54685 by exsequor
Do you have health insurance? That is a lot to pay all at up front. Perhaps talking to someone else could work something out.

Pathology takes 1-3 weeks+ depending on the complexity. For me it's been about 2 weeks between the pathologist time and the urologists schedule.

Hang in there! I had blood today after flying and swimming in the pacific for a couple hours on Saturday (I live in CO so swimming in it is not part of my daily routine). Anyways the swimming and flying triggered new blood (pink urine). Finally cleared up completely around noon today for me. Hang in there!

Drink lots of fluids, especially alkaline water IS KEY!

Heavy Wine Hematuria: 7/28/2017
Original DX: LG/NMIBC 1.7x1.5x2cm
1st TURB on 9/12/17
1st Pathology Results on 9/25/17
1st Scope Recheck on 1/12/18
2nd TURB on 1/23/18
2nd Pathology on February 2/13/18 (TBD)

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1 year 10 months ago #54678 by mamalou1962
Hi Jack, or any one, I haven’t had my first TURBT yet. I have it Thursday. But I’m having considerable pain BEFORE the test. They’re going to put Mitcomycin In after the first TURBT. My urine is now dark, very dark.
I’m ready to hit my head against a wall! Today the hospital informed me that if I didn’t pay $2300.00+BEFORE my surgery I couldn’t have the surgery! I called my DR and this is normal for this hospital! I have so many questions and I’m nervous.
One question is why did it take so long to get your biopsy back? Is that normal?
What’s about “normal” for all pathology work to come back? I’ve waited two weeks already and I thought the first TURBT would tell me what I’m dealing with. But from what I’ve read that’s not the case. Will I know ANYTHING Thursday?

Thanks everyone!
Danelle

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1 year 10 months ago #54677 by sara.anne
For many urologists a brief wash with mitomycin after a TURB is part of the procedure. While mitomycin has been used as a chemo agent, that is not how it is used here. It is simply a wash of the bladder to head off any potential re=seeding of cancer tissue from cells that might have been released during the biopsy. Not all urologists do this, but it is no big deal. BCG or interferon would NEVER be used as a wash after a TURB. They are not even administered during regular immunotherapy if there is any sign of irritation or open wounds on the bladder.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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