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T4 Bladder Cancer

8 months 1 week ago #55009 by pete172
Hello SMIKEY, I hope and pray things are going well. I had stage 3 bladder cancer, with a high grade tumor. 12 weeks of chemo, 4 cycles pre op. I am now just 6 months with my neobladder. I had to self catheterize only to help remove mucus from the new bladder and irrigate with saline. Maybe I'm lucky or I just don't remember, but it wasn't all that bad. The down side is the incontinence, witch everyone says will improve. With that said I look forward to Spring and my new golf game. All the best to you and stay positive. Pete
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10 months 2 weeks ago #54648 by lotech35
SMIKEY,

Yes the j pouche or indiana pouche will work while doing everything you did before, my stoma is pretty small and the small amount of mucous seals it right up so I've had no leakage thus far. I can hold 700cc of urine before i have to empty it. A dull tummy ache is my signal to catherterize. So far if i watch my nitely water intake I can sleep from 11:00pm till 6am. Starting out is harder since you need to slowly stretch the pouche. Convience and short learning curve are why I chose the j pouche.

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....
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10 months 2 weeks ago #54627 by lotech35
Absolutely true Sara, because of the possibility of constant catheterization I went with the Indiana pouche!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....

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10 months 2 weeks ago #54626 by lotech35
Absolutely true Sara, because of the possibility of constant catheterization I went with the Indiana pouche!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....

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10 months 2 weeks ago #54625 by smikey
I have reviewed the Cleveland clinic info which was very informative and I am looking at what my surgen has been performing or what he is good at. Also I am trying to make a decision on my future life style that would minimize infections, leakage, or other complications, being that I only have 1 kidney. Thanks

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10 months 2 weeks ago #54624 by sara.anne
I believe that the "j-pouch" is the "Indiana Pouch" described in the reference web page I suggested earlier
https://my.clevelandclinic.org/health/treatments/12546-urinary-reconstruction--diversion

While this diversion does require catheritization, it is through a specially prepared stoma in the abdomen, not what you usually think of when you imagine a catheter. There is no external bag.

The neobladder uses your natural plumbing. It requires a bit of "training" to get it to work. It is if it does NOT work
that it requires using catheters through the urethra.

Hope this helps

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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