Sorry London....the message board went on the fritz for a while and i just now saw your post from May 6th. I'm so sorry it took such a long time for pathology...it hardly seems acceptable to take a month for a diagnosis. Indeed Squamous Cell is rare...its seen more frequently with spinal patients who have to use long term catheters that cause irritation to the bladder lining or in third world countries by a parasite. I hope by now you''ve gotten the results of further testing? Please keep us informed and we'll try to help you and your dad through this...........Pat
Hi Londongirl.....sqaumous cell carcinoma usually happens when transitional cell carcinoma goes bad...constant irritation of the bladder....it happens a lot more with spinal patients who have a catheter which causes the irritation. It is rare here but cystectomy is the only course of action. Because of your fathers age i believe they would only do an ileal conduit...an outside bag. Its a shorter surgery and a bit less invasive. I'm so sorry he's so uncomfortable....Is he on any kind of anti-inflammatory drugs or peridium to lessen the pain? Pat
After a VERY long wait, we have finally been told this week that Dad has a very rare type of cancer and needs to have the bladder removed completely. They will only agree to do this after they have done another scan to check that it's not infiltrated the bowel, something which didn't show up on the first scan. I had a look on here at the name it was given (Sqaumous cell) and it all sounds way too scarey to even comprehend. It seems to me like all of this should have happened a lot quicker than it has, given the severeity of it, and I am really starting to feel very furstrated that it has taken so very long to hear that he is so seriously in trouble. Thanks in advance of any responses, and thanks also to anyone who has replied so far...
Cant really help with the symptoms just make sure he drinks plenty and avoids infection.The temptation is when it hurts to pee you try to reduce fluid intake to reduce how often you need to go then you end up with an infection and things are worse.
I am in England too and got my path results in about a week so I would be nagging.They can get those results quicker if they want to.Anti anxiety medication may help although its hard to suggest it.
Dont forget to look after yourself and the rest of your family your Dads going to need you all in the coming months.
If you go to google.com and search for transurethral resection, many articles will show up, though most are discussing transurethral resection of a prostate tumor (much more common than bladder tumors), it's the same surgery. The same scope does the looking, resecting, and sucking up the pieces of tumor (ugh). I saw a film of it once at a conference and almost fainted, it was gross. But it's a wonderful invention we couldn't do without.
What about an anti-anxiety medication for this difficult period, until he heals, at least?
I don't know what to tell you about the ongoing irresistable urge he feels. Ask the doctor if there are meds to help control it, I'm sure they exist.
Well i never figured out how a 8lb baby got out of me either.......all i know London is that they do it...some scrape, some lasering and they get it out!! I don't know what to say about your dads symptoms other than i've read other men seem to have the same irritation with the TURB....i guess with the women they have a shorter route to travel as our urethra is shorter and we don't seem to experience any pain after the procedure or at least shouldn't. Have they checked him for infection? Pat