Staying positive is the best thing you can do for yourself. You and I have the same basic diagnosis, and I'm still here with no reoccurrences 2.25 years later. Don't let the negative folks bring you down
Take care of you,
Dx 5/28/15 with 4.2cm x 2.2cm Ta HG Papillary TCC; 2nd TURBT 7/09/15, NED; 6 BCG completed 9/30/15; 3 sets of BCG maintenance completed 1/26/17. Six cystoscopes - all NED. Moving to scopes every 6 months, and no more BCG maintenance.
Hi Sarah Ann, I had not seen your nice message which is almost a month old. Thank you for sending it; it was very encouraging.
I was reading a couple ol negativr messages on the list last night. They weren't terrible, but I dislike when people start discussing that bcan time span is a short one. I want to stay optimistic and fight. Have a good day.
I wouldn't be overly concerned about this. Just common sense hygiene. It does pay to be careful with things like this but it is NOT Ebola!!!! Just use the clorox in the toilet as directed and you will be fine.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Thanks for your supportive message, Sara Anne. I loved reading that you've gone for 9 years with no recurrence. Congratulations!! I hope the BCG treatments work as well for me!!
On a second level, I'm a bit concerned not to contaminate my bathroom and am getting Clorox, disposable towel rags at Home Depot and a med size container to throw it all in. Did you have any problems with any of this? Might not be important for some, but it is for me at this juncture.