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Got Pathology Report -- Thoughts?

2 years 3 months ago #53652 by DonnaD
As a registered nurse and a fellow bladder cancer fighter I agree totally with Jack. If it were me I would seek a specialist. I had a tiny papillary tumor and within that tumor were Stages, 1-4 cells. I immediately had it removed with a followup biopsy in 2 weeks; after which I had six BCG instillations.

Please be seen again. I am finding by being on other groups that some of the uro docs are not very patient friendly nor supportive. We need to get out there and learn for ourselves and make sure we are getting the best we can for medical care. These forums help a lot.

Let us know how you do please.

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2 years 3 months ago #53648 by Alan
See the other thread. URO's do grade these. Any part that is high grade needs to be treated as all high grade. There is no halfway. Kinda like being half pregnant! I would tell go to get another opinion.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: DonnaD

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2 years 3 months ago #53646 by RJake1
I also misstated - it was "mostly low grade" not "mostly non-invasive." Guess I was nervous when I typed message earlier. So here it is: T1a, non-invasive, mostly low grade w/ microscopic focal HG." Any HG indication is microscopic (she didn't even attach a percentage to it). Sorry for the confusion.

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2 years 3 months ago #53645 by RJake1
Thanks for your reply. I didn't mean to suggest we're waiting a year. She scheduled me for 3 month follow-ups. If it reappears w/in one of the follow-up visits she suggested BCG.

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2 years 3 months ago #53643 by Jack R
Jake,

Responding responsibly (as a BC patient) to short bits taken from a pathology report is a tough task. Little words and phrases, and the order of words sometimes imparts meaning. Never have my own path reports made only clear, declarative statements; wiggle room seems to be part of my path reports. That said,

Nothing in your post would lead ME to wait a year and see if "there was a recurrence". "Mostly non-invasive" is not comforting at all; neither does the comment, "high grade present".

High grade indicates a greater likelihood of spread than low grade.

Again, it is impossible to draw any conclusion from bits of a pathology report - the sum of all the tests and findings need to be considered in making any decisions on health care - your doctor is the one to bring all the pieces together. Then, you have to decide what you want to do.

Faced with a similar situation, I sought a second opinion from a well regarded medical school hospital with a focus on bladder cancer. Then I changed doctors. For me it was the right decision.

Best,
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis

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2 years 3 months ago #53641 by RJake1
T1a...mostly non-invasive. Doc says they don't stage these anymore. My concern is that Doc said its mostly non-invasive, but there is a focal (microscopic) high grade present. Advised 60% chance of recurrence.

Doc said if it recurrs w/in a year we'll do BCG.

Does this sound right? How worried should I be? I am troubled by the presence of any high grade.

BTW, what does high grade mean? Is low grade benign and high grade malignant?

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