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Stage 0 bladder cancer

1 year 5 months ago - 1 year 5 months ago #53580 by sara.anne
David, welcome to a group that you probably never expected to join!

It is very possible that there might be an unusual amount of scar tissue and your urologist is doing the right thing to go back and do a biopsy to be absolutely sure. In fact, a second TURB (biopsy) is considered good medical practice if there is any doubt. It is also common to have urine cytology done to look for abnormal cells, although this sometimes gives a false positive result.

BCG is usually not recommended for a first occurrence of bladder cancer that isn't high grade, as it is not as effective and they sort of save it for when it might really be necessary.
I
The usual protocol for low grade bladder cancer is to have cystoscopy (looking inside the bladder) every three months for two years, then every six months until five years have passed and then once a year forever. The problem with bladder cancer is that it has a nasty little trick of coming back and they want to find it fast if it does.

Hope this answers some of your questions.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 5 months ago - 1 year 5 months ago #53579 by david777
Hello everyone. I had an operation to remove two tumors about 1 centimeter from my bladder this past March. I went back to the hospital for the doctor to look inside my bladder last week to see if all was going well but she became concerned. She told me that it seems I was not healing well. She said it looked as if there was to.much scar tissue at this time since the operation was three months ago. She was concerned it could be be cancer coming back. I asked her isn't it normal for there to be scar tissue box and she said: not this much. She did say it did look like scar tissue! I am confused by her answer and what she told me. She brought in another doctor and he said he thinks it is scar tissue. However, they took a urine sample to look for cancer cells and I am waiting the results. They also scheduled an operation in July to take a biopsy for a the pathologist to Lok at. Can anyone give me any information or opinion on this? Isn't scar tissue normal?

Also, I asked about a regimen of BCG or the chemo injections which from the research I have done, many doctors do that. I also mentioned Bropiramine taken orally. The doctor blew me off on this! She said the one shot of the chemo during the removal no of my tumors was protocol! Their plan was originally for me to undergo a cystography (if I spelled The word right) once a year to check for reaccurance. I am a 64 year old male. Any feedback on this I would appreciate as I am feeling kind of alone with all of this.
Thanks,
David

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