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Questions on Cystoscopy

1 year 6 months ago #53451 by PeggyJoan6
Hannah and Sara Anne,

We found out that Bob does have cancer cells in his urethra, and it (the urethra) has to come out. It is rare that cancer spreads to this area, and the doctor is hopeful because the scope was clear, that it is not advanced. However, reading those medical journals does not help--prognosis is not great even if caught early. The doctor said 10% chance of recurrence, so I am going to listen to HIM!

Thank you for your support....it helps me tremendously.

Blessing,
Peggy

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1 year 6 months ago #53445 by Hannah01
It is normal to get nervous, hope things went well this time as well. Keep us updated, it’s not always mean recurrence. Good Luck!!

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1 year 6 months ago #53438 by PeggyJoan6
Sara Anne,

Thank you so much for this info! I had read that urine tests can be false positive, but found nothing on false positive urethra washes. yep, I know Bob could still have a recurrence, but I will keep this spot of light in my brain. As I'm sure you know, it is imortant to think that glass-half-full thing.

I read your profile and you are truly inspiring. Maybe a cancer cure will be as I have read - more like it will be treatable and one CAN live a long a and productive life. So good to read about your recent news!

I must remind myself that the cystoscopy showed nothing on examination. Thank you again. We go tomorrow so I will update then!

Blessings,
Peggy

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1 year 6 months ago #53436 by sara.anne
It is perfectly normal to freak out!!! We have all done that, whether we admit it or not :laugh: Just a slightly hopeful note for you, cytology results from urine or washes are notoriously inaccurate.....sometimes giving false positive results. If they were more reliable, we wouldn't need to have such exams as cystoscopies! What such results indicate is that there [icould[/i] be something there, and it should be checked by more reliable tests. But NOT that the cancer has necessarily returned.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 6 months ago #53433 by PeggyJoan6
Hello all,

I am not new to bladder cancer, but new here and also a new diagnosis.

My husband had an RC 4 years ago, and all WAS well. However, after his 6 month check-up, we received a phone call that cancer cells were found in his urethral wash-his cystoscopy looked fine. We have an appointment tomorrow, but my monkey brain is not calming down. :/

Has anyone experienced this, and what does it mean? The person who called could tell us nothing, and I get that. 'Dr. Google' is freaking me out--everything I read is downright scary. Does this resonate with anyone?

Thanks!
Peggy

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