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Not diagnosed, but testing and scared

2 years 1 week ago #53353 by Kris00
Thank you for giving me those statistics. It does help to put things in perspective. I just wish that perspective would stay. :)
I find it disheartening that testing and appointments take time. I am jealous of the rich and famous that can get anything with one phone call, but most of us have to wait. Blah.
I guess my bladder ultrasound results will be in tomorrow. I know that doesn't rule everything out should it come back ok, but it's something. My heart goes out to everyone on this board. Here I am scared to death and complaining on what could be while others face it. It makes me feel a little selfish to be honest, but no matter how hard I try to stay positive and not dwell...I can't. I do appreciate the time that you guys have taken to help me. I guess it makes me not feel as alone in this.
Whatever is going on with me I hope to find out soon. Blood in pee both visible and microscopic are never good. I believe protein is due to Kidneys and not sure about white blood cells. Sigh....I should have been more aggressive 2 years ago when I started to hurt instead of accepting the diagnosis of more fiber. Thank you again for that article. I appreciate it.

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2 years 1 week ago - 2 years 1 week ago #53352 by MoreLife
This is intended to reassure you as you proceed to see a urologist for a cytoscopy, which seems to be obviously worthwhile whatever is causing your symptoms. Bladder cancer onset in a 41-year-old woman would be very rare. I don't know where to get comparably refined statistics for the US, but in the UK, the Excel detail downloadable here --
http://www.cancerresearchuk.org/health-professional/cancer-statistics/statistics-by-cancer-type/bladder-cancer/incidence#heading-One -- says the incidence rate for that cohort is about 1/100,000, i.e., 25 new cases per year in the entire UK. Of course, that's no reason to avoid testing.

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2 years 1 week ago #53351 by Alan
Can you self refer to a URO? That is where I'd start.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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2 years 1 week ago #53350 by Kris00
I had my ultrasound. Waiting for results now. My Dr office called to say that my culture was negative for infection, but to continue my antibiotics. My urine showed blood, protein and white blood cells. I asked what else that could mean, but the nurse didn't know. So now I wait. I feel like it's some kind of purgatory really.
When my ultrasound results come back I'm asking for a referral. Hopefully it won't take months to get in. I feel overwhelmed with anxiety even though I'm trying to stay positive.
I'll say a prayer for your procedure tomorrow. Hope you have a quick recovery. :)

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2 years 2 weeks ago #53340 by Alan
You will get through this! One day at a time. Life itself can be scary. I will share that I am to have a heart catherization done Friday. First surgery for me in 5 years but, it has to be done and as complicated as it is, problems are usually remote....still. One day at a time!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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2 years 2 weeks ago #53339 by Kris00
Thank you for taking the time to read my post and for replying. I go tomorrow for my ultrasound, but I am going to ask him to refer me to a urologist for further testing even if no cancer shows tomorrow. I know ultrasound can miss things. I didn't even think about past stones nicking anything. I've had problems with UTIs all my life but it's just different now. I don't know how to explain it. Just different. I am scared about it being cancer as my symptoms fit the bill, but it's so similar to regular UTI's it's hard to tell and I don't think Drs take it seriously when they find blood in urine. At least that's been my experience. I am trying not to jump to terrible conclusions buts it's difficult. It's scary stuff. I wonder how most people detect they have a problem and if it's similar to mine. I will come back here tomorrow with my results If they give them to me. Thank you again.

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