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Diagnosed 4/19/17

2 years 10 months ago #53207 by dieseldoc
First a foremost, take a big breath. Then GET a second opinion at a place were they do a lot of these treatments usually at a college hospital that specializes in bladder cancer. They usually can make some kind of payment arrangement with you. I'm sure others on here will chime in with other information for you.
Sorry you have to be here but glad that you found use! Good luck!


T1,NO,MO battling bladder cancer since 2005
The following user(s) said Thank You: Sunchaserwolf

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2 years 10 months ago #53206 by Sunchaserwolf
Hi everyone,

I received the pathology report from my TURBT I had on 4/11. I have a Stage Two invasive papillary carcinoma, high grade (4.5 x 4.5 x 1.3 cm). My doctor thinks bladder removal is my best option but I told him I am uninsured (not eligible for ACA or Medicaid) and I would need to find other options or hospitals willing to work with me as that is way out of my league. I could do a chemo/radiation combo but I was told the cancer can return and it may fry the parts of the intestine used to make a sac in place of the bladder. Has anyone had any luck with those therapies?

I am supposed to have a CT of my lungs to make sure they are clear. I will then have an appointment with a BC oncologist. I will pick his brain to see what other options are available. Right now I'm just in a numb daze. Thanks so much for this group and your input!

CT Urogram 3.5 x 2.8 tumor found. - 3/23/17
Cystoscopy - 3/28/17
TURBT 4.5 x 4.5 x 1.3 cm urothelial carcinoma removed - 4/11/17
Dx T2G3 -4/19/17
MVAC begins - 5/9/17

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