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Turbt - What to expect

1 year 7 months ago #53191 by Teddys Mom
Had the procedure today. She removed the tumor with clear margins. I did not need a catheter. You were right about the path report. I have an appt. next Tuesday where I'll get the results. That's probably why I couldn't get to sleep tonight. Waiting another week, as you all know is like torture.
I have had some pwp (pain while peeling) and a small amount of bleeding. I feel a little crappy stomach wise but that is probably the anesthetic.
I'll let you know how it goes next Tuesday.
Trying to hold onto good thoughts and getting to sleep.
Today's Mom

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1 year 7 months ago #53185 by Alan
Teddy's Mom,

I have learned patience in all of these. As Jack said, I would expect the TURB pathology report to take a few days. Or, as I have learned, one day at a time. A surgeon can only guess, that is what a pathologist is for. Keep remembering this IS treatable and beatable while no fun waiting.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 7 months ago #53179 by Teddys Mom
Thank you for the intelligent question suggestions. I have a positive attitude and I've beat cancer once and if that's what I'm dealing with again, I'll meet it head on. Thanks for the encouragement too!

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1 year 7 months ago #53176 by Jack R
Teddy's Mom,

May things go well tomorrow for you.

A first question might be, "Has the pathologist issued the FINAL report ?" There may be a final report a few days later, so there MIGHT be a delay in getting all the answers you are waiting for.

I think that the most common question is, "Did you get all of the tumor ?" I have always had to wait 3 to 10 days for the pathology report.

One of the more important questions is, "Do I call your office OR do I go the nearest ER if there is heavy bleeding or no urine is passed for (HOW MANY) hours." Make sure you are given a plan for either possibility - easy to deal with in the proper setting, tough sitting at home wondering.

Relax. (easy for me to say). You are dealing with the tumor. This is a step in the good direction.

Best,
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
T0 CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis T0

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1 year 7 months ago #53172 by Teddys Mom
Tomorrow is my surgery and I'm getting a little nervous. My Doc said she will have the path report during the surgery. What questions should I ask her afterwards? Thanks.

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1 year 7 months ago #53155 by MadLove
Dear Teddy's Mom,

In reading forum postings, there does seem to be a wide range of recovery experiences following a TURBT.

Based on my husband's experience, staying well hydrated after the TURBT is essential.

His recovery time and residual discomfort has varied with the extent of the "scraping" as he calls it during the TURBT. Twice he left the hospital with a catheter which we removed several days later at home with Dr's approval.

Pyridium was prescribed following each of his TURBT's (and so were antibiotics and pain medicine). Pyridium results in orange urine which can leave stains on fabrics/surfaces.

Urgency/frequency of urination increased for a time after the TURBT so he carried a disposal urinal and change of clothes for longer car rides and work commutes just in case.

One of the most difficult aspects of each TURBT recovery was waiting for the phone call about a week later with the pathology results.

Best wishes on your procedure.

Husband's journey:
01/2015 1st cystoscopy
03&04/2015 TURBTs-CIS
07/2015 Finished BCGx6
08/2015 biopsy-BENIGN!
10/2015 Finished BCGx3
12/2015 Cysto, redness
01/2016 TURBT, Benign
04/2016 Cysto
05/2016 Finished BCGx3
07&11/2016 Cysto's
1/2017 Finished BCGx3
2/2017 Cysto, redness
3/2017 TURBT, Cysto...

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