Just finished my 3rd BCG this morning. The second week was a little harder for the last 15 minutes of the 2 hours and slightly more painful afterwards for several hours. The 3rd week one this morning was a bit harder than the second one, but not as bad afterwards, go figure? My Urologist will take a look in August (he would have done it in June/July but I'm gonna be off traveling) and then I'll be scheduled sometime in Sept/Oct. for another 3 weeks. What a nice break!!! Hope everyone else is doing well, Jay
You have been most diligent over the past few years to where you are a veteran! The quick observation on your new URO not scraping I would opine that is all good. Every "procedure" from scopes, TURBS, scrapes and everything that is invasive carry some risk. Albeit a small risk to most of these. My URO was aggressive but, he also took his foot off the pedal once he judged I was out of immediate risk to where he even suggested I accelerate the time between scopes because of those small risks. He took me from a year of every 3 months to the second year of every 6 months and 3rd to yearly. This is NOT a normal protocol! I OK'd this but, I say this only because every case is different and I also have a cytology 6 months opposite of my scope with my annual physical.
Thanks for you posts! You are beating this!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
As to "look or biopsy", keep in mind that the doctor is checking for a return of 'non-invasive superficial bladder cancer', which by definition is on the bladder surface. As one school of logic goes, if everything looks OK, then there is nothing to biopsy.
Obviously, your old doc did not find anything at the biopsies, or he would have recommended treatment rather than continuing maintenance.
Unless your former doc had some suspicion of a problem, it is hard to understand the constant biopsies. Perhaps he had a patient who's unremarkable bladder turned sour in a hurry in the past. Or he was just extremely cautious.
As to stretching inspections out to six months, I say "Way to Go". It seems you have the upper hand on the cancer. The training wheels are off, and I hope your ride is smooth until the next checkup.
What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again
1/2020 CIS is back...
My urologist did not do a "scrape" every time he examined after BCG. IF there appeared to be a problem, he did, even though he thought it was BCG-induced cystitis (It was) I always drove home...about 20 minutes...after treatment.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society