Since my last post, I have completed 2 cycles of chemo (each 3 cycle was three weeks) and did a CT scan a week after the last treatment. Good news is that the chemo has significantly reduced the tumor, I was glad to see that all this chemo sickness did have some benefit. This was supposed to be the end of the chemo and then remove the bladder this week. However, my Doctor wants me to complete another cycle before the surgery. He wants to reduce the size of the tumor even further before he removes the bladder. I do not like doing any more chemo, but I do like his reasoning and I will follow his advice. I am still very nervous and scared, he will be creating a neobladder from my small intestine and that makes things even more nerve-racking for me. I was hoping to hear from someone that has had the neobladder surgery and survived to share their story.
Thanks for sharing the links, I found some good info.
1 year 11 months ago - 1 year 11 months ago#52971by Alan
Welcome KTMiller! We are all sorry that anyone has a use for us but, there are many caring people here that have gone through what you are doing and have done fine. This is a treatable and beatable disease. To reassure, when one has stage 2 or higher the standard of care is cystectomy and usually chemo for some rounds before to kill anything that might be lurking. I have not had to have a cystectomy so hopefully there will be others that will fill the blanks.
I am linking you with a site many of us refer to others with the 3 main options on diversions for bladder removal from the Cleveland Clinic. See: http://my.clevelandclinic.org/health/articles/urinary-reconstruction-and-diversion also, http://my.clevelandclinic.org/health/articles/bladder-surgery.
Keep posting and someone will see your thread with more info.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
I live in Germany with my wife and daughter. Recently, I underwent surgery to remove a tumor from my bladder. The tumor pathology report indicated that it was pT2a-b, the doctor recommended bladder removal after 6 cycles of chemo. I am in a daze, I do not know what chemo involves or how the surgery will affect my life. The surgery will be done in Germany, so I can be close to my family. I am very scared and not sure what I can expect.