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1 year 9 months ago #52879 by CatherineH
Hello and welcome Donna.

The good news in your case is that it was caught early and you are already started on a treatment plan.

My turbt was 7 years ago and I also had the mitomycin with no side effects. It is a good safeguard against any cells released during the procedure as Alan said.

Best wishes... Catherine
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TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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1 year 9 months ago #52878 by CatherineH
Hello and welcome Donna.

The good news in your case is that it was caught early and you are already started on a treatment plan.

My turbt was 7 years ago and I also had the mitomycin with no side effects. It is a good safeguard against any cells released during the procedure as Alan said.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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1 year 9 months ago #52877 by Alan
Donna,

Welcome. Always ask away and some one here will have "been there and done that" also. Many times mitomycin is used after a second TURB when pathology indicates a high grade tumor from the 1st TURB. Primarily it is a wash to kill off any re-seeding cells and also kill anything else around the TURB site. I had it done after my second TURB also. I had zero side effects but, everyone is different. BCG is a wonderful drug and the majority of us have good success with it. While not completely without side effects it sure beats the chemo so many have to endure with other cancers. You are on your way to beating this!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: DonnaD

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1 year 9 months ago #52875 by DonnaD
Hi, Everyone,
I am diagnosed as of feb 15 with high grade CIS. My tumor was found incidentally while having a sub urethra sling placed. The surgeon did TURBT while I was on table on Jan 24. However the small 1 mm tumor got squashed up. So I had the second TURBT done by a cancer urologist. He said it did not invade but the cells from the first TURBT indicated high grade. He did intravesicular chemo with mitomycin C and said I will start BCG in 5 weeks.

Has anyone else had the mitomycin? Did you have side effects?

Thank you. I hope to participate often. I am 69.

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