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Probably have bladder cancer

2 years 8 months ago #52837 by LillianG
I followed the same path as you are currently on. My first test was a CT scan, followed up with a TURB within a week. I also had a large 'ugly' thing removed and I'm still here, still have my own bladder, and I'm feeling fine.

Hang in there. The waiting for the results is the hardest part. Once you know what you're dealing with and you have a treatment plan in place, things will get much better. You are on the right path, so please keep us posted on your progress.

Take care of you and try to relax,
Lilliang

Dx 5/28/15 with 4.2cm x 2.2cm Ta HG Papillary TCC; 2nd TURBT 7/09/15, NED; 6 BCG completed 9/30/15; 3 sets of BCG maintenance completed 1/26/17. Six cystoscopes - all NED. Moving to scopes every 6 months, and no more BCG maintenance.
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2 years 8 months ago #52835 by Alan
As George said I wonder why a cystoscope wasn't done but, sounds like the CT Scan was pretty conclusive of something being there. The TURB was needed anyway so yes, I believe you saved some time and anguish waiting. The good news is whatever they find you are on your way to solving it!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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2 years 8 months ago #52834 by jdbark1952
I had the TURB done today, I am in very little pai and have not taken so much as an aspirin for pain.

The Doc said "it was big and ugly", will get the pathology report in about two weeks.

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2 years 8 months ago #52783 by jdbark1952
George, thanks for coming in.

My urologist said that with the results of the CT we should just skip the cysts copy and do a TURB,, get a pathology report and save some time.. Saving time works for me.

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2 years 8 months ago #52782 by GKLINE
I wonder why a cystoscope is not the first thing that a Dr would do?
It is very conclusive and quicker than a scan. But you will be getting one when you have the TURB so maybe I am just talking jibberish.
Take a nice deep breath and Try(really try) to find other things to occupy your mind.
But remember this...... we have been where you are..... and we're still here

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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2 years 8 months ago #52757 by sara.anne
Welcome to the group you really don't want to join! And maybe you won't have to. Until you have a TURB and get the results from a pathologist you reall don't know what you are facing. And remember that most patients do not require a cystectomy. There are good treatments for bladder cancer!

You are in an excellent place for treatment. The urology department at USC is one of the best in the country and UCLA also is a possibility.

You are doing all the right things.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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