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Probably have bladder cancer

2 years 5 months ago #52901 by sara.anne
I do not know Dr Skinner personally, but she has a wonderful reputation. If I ever need a second opinion or find myself in a complicated situation she is at the top of my list. You will be in a really good place!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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2 years 5 months ago #52900 by jdbark1952
Got the report from the second opinion on pathology, it was not as optimistic as the first, looks like the is an invasion in the muse tissue.

My Doctor is wanting to send me to Dr Skinner at Stanford Med center. What I have read about her is pretty positive.

Anybody here have any experience with Dr Skinner?

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2 years 5 months ago #52865 by jdbark1952
Intravesicular, not systemic, yeah it will be scheduled just like BCG once weekly for six weeks then time off with three week follow ups, not sure how those will be scheduled.

Just glad it looks like I won't have a RC.

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2 years 5 months ago #52863 by sara.anne
When you say that "chemotherapy is probably in your future" do you mean systemic chemo or intravesical mitomycin where it is instilled in the bladder just as BCG is? I suspect that might be what you will have. It is not nearly the same as if it were traditional chemo....often it is used when BCG is either not tolerated or indicated for other reasons.

You should do fine!!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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2 years 5 months ago #52861 by jdbark1952
Got path results.

High Grade Urothelilial carcinoma with at least superficial invasion of the lamina propria.
No muscle infiltration is identified.

My Doc is sending to another pathology group for a second opinion.

A second TURB is scheduled in a month and looks like that at this time just chemotherapy is in my future.

Since I have a positive TB skin test he will not be giving me BCG.

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2 years 6 months ago #52838 by jdbark1952
Lilliqan,

You words encourage me. I notice that your tumor was close to the size mine was as seen on ct, mine was 5.2cm,I hope that I am as lucky as you and get to keep my bladder.

Thanks

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