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BCG and irritated bladder

1 year 11 months ago #52544 by MadLove
Hi, Winterwhite. My husband also had a bit of a detour in his BCG schedule due to bladder irritation. It occurred in December 2015 when redness was observed during a routine scope exam about six weeks after his first maintenance round of BCG (doses 7-9). This led to another "scraping" as my husband calls it. The earliest available surgery date was a month later (January 2016) so our holiday celebrations were a bit more meaningful. Fortunately, the pathology report confirmed no recurrence of CIS. Since then, he's had another round of maintenance BCG, another scope with no signs of irritation and began another three week cycle of maintenance BCG this week. Wishing you and your husband the best.

Husband's journey:
01/2015 1st cystoscopy
03&04/2015 TURBTs-CIS
07/2015 Finished BCGx6
08/2015 biopsy-BENIGN!
10/2015 Finished BCGx3
12/2015 Cysto, redness
01/2016 TURBT, Benign
04/2016 Cysto
05/2016 Finished BCGx3
07&11/2016 Cysto's
1/2017 Finished BCGx3
2/2017 Cysto, redness
3/2017 TURBT, Cysto...

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1 year 11 months ago #52522 by Jack R
Winterwhite,

I have also had an inflamed and irritated bladder up to 2 months after BCG; I am told it is fairly common, and it is a sign that the BCG is continuing to do it's job - creating the immune system reaction that is desired. It is, however, not a lot of fun.

It does not sound like BCG maintenance is being delayed, but rather that the timing is right on track to start 2 to 3 months after the initial 6 dose treatment. There are a number different maintenance schedules that doctors seem to favor.

Best
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
2 Years and 24 BCG/BCG+Inf
T0 CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3

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1 year 11 months ago #52521 by sara.anne
I had to wait for BCG treatments for a week or so during the series due to irritation. This is not uncommon. But it is well worth it, for BCG does do a number on high grade bladder cancer!!!

You also might want to remind the urologist, if he has not mentioned it already, that the BCG dose can be significantly reduced and still be effective if it become too irritative. By the time I finished my maintenance I was down to 1/3 the original dose.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 11 months ago #52520 by winterwhite
My husband finished up 6 weeks of BCG on November 18 and went for his first cystoscopy today. The Urologist said he saw no sign of cancer, but my husband's bladder is very red and irritated from the 6 weeks of BCG. Urologist is having him come back in two months for another cystoscopy and then hopefully get him started on BCG maintenance. Just curious if others have had irritation and waited a bit for maintenance? Thanks in advance.

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