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Bladder tumor

3 years 3 months ago - 3 years 3 months ago #52057 by Mike M
David,
As others have said, the pathology report resulting from the TURBT will drive your treatment. I'm in San Antonio and currently being treated at BAMC. Had a second opinion consult recently at the CTRC, UT Health Science Ctr, by Dr Robert Svatek, a bladder cancer specialist. You might want to consider making an appointment with him for a second opinion after your TURBT results. I'll probably be switching my care over to him after completing my second 6-week BCG induction course this month. The CTRC is an NCI facility as is MD Anderson, in fact, Dr Svatek, was trained at MD Anderson. Best of luck on the 13th!
- Mike

12/15 - Diagnosed Ta HG, 1.5cm Pap, Focal CIS
3/16 - Began BCG following NCCN and SWOG guidelines
2/19 - Ta HG recurrence and CIS/Ta HG in right kidney/ureter
2/19 - Nephroureterectomy to remove right kidney/ureter
6/19 - BCG x 30 completed
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3 years 3 months ago #52055 by Anarae214
Dave, you should always have a copy of your tests or at least have electronic access to them. That is your medical information.
It also gives you the opportunity to assess and research your options.

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3 years 3 months ago #52049 by sara.anne
Hi there, Dave!

The reason for getting a copy of the path report is that it is the document on which every thing else will be based. All the other tests are sort of quick pix of what is going on at the time, and are a part of the diagnostic puzzle, but not as critically informative. Should you decide to seek a second opinion down the road, your doctor's office will send your entire file to the urologist you ask them to, so he/she will have the whole story.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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3 years 3 months ago #52048 by dtat60
Thanks Jack! It sounds like you've "been there, done that" yourself. I'm an active person and "doing nothing" will be one of my biggest challenges - that and just the thought of having to go to the Doctor all the time....this issue will be my first experience with pretty any illness so that alone is quite an adjustment mentally.
From your comments I think I will be able to do OK with regard to the cattle - little things like lifting a hay ring, feeding cubes will be something I will need to pay attention to at least until I heal. After that I assume I will able to get back my normal activities.
Thanks again for your feedback!
Dave

08/16 Blood in Urine;09/16 CT Scan, RPG, Cysto;10/16 TURBT;12/08 BL TURBT;01/17 6X BCG;05/17 NED, 3X BCG, 9/17 NED, 3X BCG,1/18 NED, 3X BCG,7/18 NED, 3X BCG
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3 years 3 months ago #52047 by dtat60
Thanks Sara Anne for the info. I appreciate you taking the time to explain some of my questions.
At my Austin Urologist they request a urine sample every time I go. So far I have also had a Blood tests, X-Ray, CT Scan (in their office), and of course the previously mention Cystoscopy. I noticed that you had mentioned in several other posts to get a copy of the pathologist report after the Turbt. With that in mind, should I request a copy of all of my tests ongoing?

08/16 Blood in Urine;09/16 CT Scan, RPG, Cysto;10/16 TURBT;12/08 BL TURBT;01/17 6X BCG;05/17 NED, 3X BCG, 9/17 NED, 3X BCG,1/18 NED, 3X BCG,7/18 NED, 3X BCG
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3 years 3 months ago #52043 by Jack R
David,

Sara Anne's comments cover the medical basics, I'll try to answer the lifestyle part of your question.

First, util you have the TURBT and a pathology report and a treatment plan, everything ahead is unknown. I'll assume that you have early diagnosed superficial bladder cancer, a safe bet, given your post.

You will be advised to not lift more than a few pounds for a week or two after EACH TURBT (5 pounds per my Doc) and to "take it easy" during that time. Ignore the advice, and you may cause bladder bleeding which can require treatment. You may have bladder pain and or need to urinate frequently while doing chores.

Plan ahead. Figure out what it takes to avoid bucking hay or picking up 50 pound feed sacks. Check the fences in advance. Line up a support team for the just-in-case situation, I assume you have a group that help each other when needed - let them know you may need AN OCCASIONAL bit of help on short notice. You will need someone to do chores on the day of the TURBT.

Try doing the chores WITHOUT tightening your abdominal muscles. It will reduce (not eliminate) the pressure on the bladder. Allow extra time for chores.

Have your feed dealer deliver and stack hay and feed instead of picking it up when you are treating.

I will guess that little lifestyle change will be needed on the ranch, as long as you take care of yourself when treatment require healing time. Talk to the doc about what you do - the heavy stuff - and see what s/he REALLY considers important, rather than the generic prohibitions they generally offer.

Using the tractor to load daily feed into the truck & moving everything heavy works for me 98 % of the time.

Best
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
Until next scope :) :)
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