Forum

× Welcome click the New Topic button to post

TURBT Postponed

2 years 4 months ago #51533 by Jfoutz
Good girl for following up with the cystoscopy. If it is the awful c word, I bet you caught it real early since it didn't show up on the ct scan. Good luck and keep us updated!

Janice

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

Please Log in or Create an account to join the conversation.

2 years 4 months ago #51532 by purrrkat
Thank you Janice!

I've actually planned to go to work tomorrow, as normalcy is good. If my tumor does come back as cancer, I will definitely take your advice and get a pedicure for my first follow-up in the stirrups!

One tiny blessing is that I've learned cystoscopies are no big deal at all. That's good, because there will likely be many in my future!

Based on your "stats", it looks like you did a really good job having your hematuria evaluated immediately. I had my first bout on June 3, and then 3 more after that. Nothing since. Clear CT scan, negative cytology. But the cystoscopy found the tumor. Vigilance pays off!!!

I'll have you in my thoughts as well.

Please Log in or Create an account to join the conversation.

2 years 4 months ago #51531 by Jfoutz
Hi purrrkat,

I understand exactly what you are going through. I got busy cleaning closets, printing life insurance claim forms, going over our investments. The only thing I wouldn't due was plan my funeral. Thank goodness I finally got my first TURBT after waiting 6 weeks. Then more waiting for results and a second opinion and now I'm on my 6 weeks of BCG and able to breathe a little better. I still have a few anxious moments, but I've convinced myself to focus on enjoying the time I have. It is definitely all consuming, so I have started planning for things in the future and learning to talk myself off the cliff. I know you will too!! Take some time and get a pedicure so when you have those feet in the stirrups you can enjoy looking at your feet. Ha! I actually did that and felt much better.

One more thing, nothing has been as bad as I imagined..actually nothing has bothered me so far except the waiting.

I'll be thinking about you and praying for you.

Best wishes,
Janice

4/17/16 hematuria
5/26/16 TURBT 2.5x2.5x2cm TA HG,
6/20/16 cystoscopy NED,
7/15/16 start BCG

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

Please Log in or Create an account to join the conversation.

2 years 4 months ago #51529 by purrrkat
Surgery postponed to Wednesday the 20th...Not. Happy. When one is terrified anyway, one clings to the things that can be counted on--like, it will all be done tomorrow. So it's another morning waking up full of terror and dread and wondering if I'll be around to see my daughter through her bumpy adolescence, worrying I'm going to leave my husband without the love of his life.

I know it sounds overly dramatic, but I'm really struggling right now.

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add attachements.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 1 User and 335 Guests 
Scared's AvatarScared

Legend: Site Administrator Global Moderator Moderator Banned User Guest

Statistics

Total Messages: 50846 Total Sections: 1 Today Open: 1 Today Total Answer: 10
Total Subjects: 6515 Total Categories: 11 Yesterday Open: 1 Yesterday Total Answer: 5
Total Users: 7772 Latest User: AussieG
Powered by Kunena Forum