Good luck. I hope it goes smoothly for you. Chances are your tumor will be removed and you will spend more time in your urologists office than you had ever planned, but you and the urologist will grow old together.
12/2015 - TURBT, non-invasive T1, mixed grade, 3 tumors
1/2016 - Begin BCG weekly for 6 weeks
Again, thank you for your encouragement! I spoke to the surgeon personally today and now feel a bit more relaxed. He said that my tumor is small (about 1 x 1 cm--which is probably why it wasn't visible on the CT scan) and looks pretty superficial. He also said that he's performed hundreds of these procedures and that my case is pretty simple--not a lot of room for complications. Of course he can't speak about grade, as that's entirely dependent on pathology.
Purrcat, no - I did not have a cystoscpe or any cytology done during my initial diagnosis. I had a CT scan, and the tumor showed in the scan. I was then referred to a urologist, and he scheduled me for a TURBT, based solely on the CT scan.
I have had cytology done after each follow-up cystoscope. So far, I've been lucky and they've all come back Negative.
I'm sorry to read that your TURBT was postponed. I know that just adds to your stress, but hopefully it will be over by the time you read this reply. After the TURBT, you get to wait about a week or so for the pathology results, and then you'll know exactly what you're dealing with.
Please get some rest, no lifing more than 10 lb, and keep us posted.
Dx 5/28/15 with 4.2cm x 2.2cm Ta HG Papillary TCC; 2nd TURBT 7/09/15, NED; 6 BCG completed 9/30/15; 3 sets of BCG maintenance completed 1/26/17. Six cystoscopes - all NED. Moving to scopes every 6 months, and no more BCG maintenance.