Mike,
we are on a similar course. Original Diagnosis was papillary & CIS. 6 BCG and I was clear of cancer - for 2 months - when the "red spots" turned out to be CIS again.
After a lot of discussion it was decided to do 6 more BCG since biopsies showed the CIS to be on the surface. In 6 more weeks the doc will take a look. If clear doc wants to do 6 mos of monthly maintenance then reevaluate.
Having been cleared by cystoscope and cytology previously, then un-cleared by tissue pathology, I disagree with Doc and want to do another turbt with random sampling. It will be done my way <g>.
I like the idea that BCG can be the answer for many, but I am more focused on taking more radical steps before there is a high chance of it going invasive. I don't like reading that a high number of "non-invasive" cases prove to be invasive after a RC is performed.
Sometimes I feel that deciding when to consider the RC is like playing at the craps table. Am I going to walk away with the safest win, or keep hoping pushing my luck.
Best
Jack
What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis