Hi Lupinbill,
I'm in a similar situation, just a few steps behind. My urologist found a small tumor, papillary appearance, less than 1 cm in size. I had my TURBT yesterday, which went fine, and the doctor still thinks low grade and Ta. Now, the wait for pathology results
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I wanted to ask you, and others can chime in as well, what symptoms did you have that ultimately led to finding your tumor? For me, it was a few instances of very faint hematuria; if my vision weren't as good as it is, I might have missed it. That was over a month ago, and none since, not even on dipstick tests.
It's just amazing to me that such a small mass would produce enough blood that I could see it. I guess that's the one blessing, if you can call it that, of bladder cancer. It does announce itself, and early.
I also wanted to comment on your concerns about discussing your condition with your son. I have a 13-year-old daughter and have been completely open with her throughout this process, unknowns and all. This seems to be working very well. It has decreased MY stress because I feel I can be "myself" around the house and if I have a low moment, she knows what it's about. My husband and I can discuss issues about it with her present (such as appointments, opinions on doctors, etc) and I think the implied "normalcy" is good. She also knows, as I have reassured her, that this type of cancer at this stage is highly treatable. Fact. And that I will most likely live long enough to ultimately die of "old age." I'm 50 now.
Best wishes to you. Nice to meet you, apologies for the circumstances
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