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Trying to get answers

2 years 9 months ago #50816 by DougG
Robin,
You are absolutely doing the right thing by going to see a urologist. After your exam, you should have more answers and answers are what you need! Best wishes on Monday.
Anita

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2 years 9 months ago - 2 years 9 months ago #50781 by Alan
Not always but, the usual extra exam besides cystoscope is a CT scan as Josh said. Primarily to look at the entire urinary tract. Also, I second Sara Anne's advice, it is time to see specialist-a URO.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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2 years 9 months ago #50779 by robin63
Thanks for your response. I have had recurrent UTIs in the past with a history of pyelonephritis several years back. I wasn't sure if I needed to go immediately to a urologist, so I started with my GP who is usually very good at referrals.

Hopefully, we will have more answers after tomorrow.

Many prayers for you all, and I appreciate all your information.

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2 years 9 months ago #50778 by sara.anne
As you mentioned, you know enough to be dangerous!!! My symptoms were "uti"s." Over and over. My gyn said to get to a urologist asap. He did cystoscopy, which showed abnormalities....then TURB which confirmed bladder cancer. BTW, I find cystoscopy much easier to tolerate than a pelvic!! With what you know, why haven't you seen a urologist?

As you know, there are lots of reasons for blood in the urine, but your hysterectomy removes several of these!!!

Wishing you the best...

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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2 years 9 months ago #50777 by robin63
Thanks so very much! I probably would not be so concerned, but there is a very strong family history on my mother's side for cancer of all types. I realize that many of you are dealing with much more serious issues than I am currently, and I appreciate you taking the time to encourage me in this circumstance.

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2 years 9 months ago - 2 years 9 months ago #50776 by jroza1
There are a ton of reasons for blood in urine and the more you search the more you will see that it isn't always resolved or root cause discovred. Continue to advocate!!!! I am lucky enough to be in an HMO whose sole focus these days is early detection and preventative medicine, so I was scheduled for a CT scan and they were able to tell easiely that I had an 8mm mass in my bladder and my resection is tomorrow. I went the doctor after a really bloody day of urine.

Keep after them!!! A CT scan according to my Urologyst is the least invasive way to see everything, which is why they go there rather than straight to the Cytoscope, which is uncomfortable.

Recently, we had a gal on the boards who experienced the same as you, turned out she had a boulder kidney stone and needed surgery to remove it. Don't take no for an answer when it comes to your health.

Josh

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