Experienced centers in NJ

8 years 1 month ago #50664 by DougG
Replied by DougG on topic Experienced centers in NJ
Best of luck, Joe. You were smart to get another doctor's opinion. Glad you are having the ureter out. Are they also taking a cusp of the bladder where the ureter joins the bladder? My husband, Doug, will be having his kidney, ureter, and cusp of the bladder removed within the next month. Scary business!

Anita

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8 years 1 month ago #50662 by Jmitchell418
Replied by Jmitchell418 on topic Experienced centers in NJ
Sara,

Thanks for your advice and for the quick reply! I'll certainly be seeking additional advice after surgery next week.

Forgot to mention that my name is Joe.

45YO male
11/30/2015 Left nephrectomy
2/17/2016 left ureterectomy
8/10/2016 cyctoprostatectomy w/ileal conduit diversion
Cancer free since!

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8 years 1 month ago #50660 by sara.anne
Replied by sara.anne on topic Experienced centers in NJ
YES!!!! Does that answer the question?

Woops....sorry to see you here. but you are very welcome. And YES, a second opinion at Sloan-Kettering would very much be in order. You do not have "garden variety" bladder cancer, but instead complications that it had spread to your ureters and kidney. You need to be seen by specialists with lots of experience in treating unusual cases.

For high grade bladder cancer, BCG is the treatment of choice and has enabled many of us to keep our bladders and remain cancer-free. Whether it is the appropriate treatment in your case should be a discussion you have with the experts.

Wishing you the very best.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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8 years 1 month ago #50659 by Jmitchell418
Experienced centers in NJ was created by Jmitchell418
Hello,

Recently diagnosed and looking for help with a plan that will get ahead of this! (aren't we all?). Here's my story: I'm a 44 year old male that went to urologist last Oct due to bleeding. CT scan revealed a 6.5cm left kidney tumor. Ureteroscopy in Nov and subsequent path indicated renal cell carcinoma. On 11/30/15, I had a left nephrectomy...and then the surprise. Kidney pathology indicated stage 1 high grade transitional cell carcinoma. My urologist wasn't concerned that I still had a ureter remaining, so I got a second option to see if the surveillance plan developed by him was sound. It wasn't. Second Doc highly recommended removal of the ureter and a cystoscopy in advance. The cystoscopy was completed on 2/10/2016. Tumors growing on the ureter as it penetrates the kidney and several tumors sites throughout the bladder. Ureterectomy scheduled for 2/17/2016 long with TURBT and more pathology. I'm sure this is the beginning of my journey.

I'm reading a lot of good results from BCG treatment and that's what's being considered after surgery next week. I'm a bit cautious that my first urologist seemed to get out of his comfort zone and I'm worried about constantly chasing this. Maybe it is what it is, but do I benefit any from taking myself to Sloan-Kettering or another center?

45YO male
11/30/2015 Left nephrectomy
2/17/2016 left ureterectomy
8/10/2016 cyctoprostatectomy w/ileal conduit diversion
Cancer free since!

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