Hi Catherine, and yes, it is unfortunate to see you here but we do welcome you.
First, any time that you have something unusual, you do need to contact your doctor...as you are doing tomorrow. Of course, nothing like this happens except on a weekend
And normally a patient does not have discomfort or pain this long after a TURB.
Your doctor said that the tumor was "high grade?" Do you have a copy of the pathology report ....you should. Usually high grade bladder cancer is treated, probably with BCG or something similar, and NOT put on a "watch and wait" schedule. This is something you might want to explore with your urologist and/or seek a second opinion about the treatment plan at a place that sees and treats LOTS of bladder cancer. Many urologists are more familiar with prostate issues than with current thinking on bladder cancer.
As for living with the sort of black cloud over your head, you do, kind of, get used to it. I was diagnosed with high grade just 8 years ago....the first few months were a bit nerve-wracking, but as I realized that my treatment was working and that my uro was right by my side, the anxiety subsided a bit. But I have to admit that I get a bit nervous when my annual exam time comes!
Hope your doctor gives you some relief. There are prescription meds that can alleviate the pain and irritation (and they have the additional fun property of usually turning your urine a bright orange or blue!).
Please let us know what happens.
Sara Anne