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2nd re-occurrance in 6 months

2 years 11 months ago #50174 by GKLINE
Please get that second opinion from a Real Bc specialist.
I had Mytomycin after my TURB. But BCG is the real deal and RC is the only step if BCG does not work.
I hope you find a good DR who knows their stuff and fights this as agressivly as possible. It is the only way to go.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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3 years 2 hours ago #50168 by sara.anne
From what you report, your mom does need to seek another opinion. BCG does have side effects....but so does Mitomycin. And BCG is the drug of first choice, mitomycin less so. Mitomycin is often given in just one dose during a TURB....but that is a different thing altogether. AND you have a couple of really good options.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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3 years 3 hours ago #50167 by Bevans16
Thank you so much! I really appreciate the referral!

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3 years 3 hours ago #50166 by Bevans16
Hi, thank you for the reply and referral. The doctor told her there were a lot of nasty side effects with the BCG but he did not tell her any of the side effects of mytomyacin. He told her it was up to her which way to go but that with the BCG she had to wait 2 weeks after surgery and with the mytomyacin she could have it immediately.

We are definitely going to seek a 2nd opinion. This doctor missed the first re-occurrence during the scope and only noticed it when she asked him to show her where the first tumor was removed. This week when he came to talk to her he had her history all messed up and thought this was her 2nd recheck and that the first recheck was normal. I really have no faith left in his abilities at this point.

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3 years 19 hours ago #50158 by Hudsongrl
Brandy, my husbsnd was disgnosed with superficisl bladder cancer 3 years ago, he sees Dr.James Kozlowski at Northwestern Medical in the city of Chicsgo,

. He is a uro/ oncologist snd we feel he is excellent.

Best of luck!

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3 years 20 hours ago #50157 by sara.anne
A second opinion would be a very good idea in her case. Dr Gary Steinberg at the University of Chicago Medical Center would be a good choice.

Did her doctor say why he recommended Mitomycin instead of BCG?

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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