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question on cysto and diagnosis

3 years 7 months ago #50431 by sammyy
thanks! its appreciated!

unfortunately though now I am dealing with Cystitus.

Hoping that will be gone soon....

hope its not a sign of more things to come.....


40 year old male.
T1 Low Grade
Turbt done on 12-4-15

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3 years 7 months ago #50392 by Shelbel
Congratulations on an excellent report! May the rest of your checkups be as smooth!

And thank you for the update!
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3 years 7 months ago #50376 by sara.anne
Your uro is right on the money with his treatment plan. BCG is NOT as effective with low grade tumors. AND you will want to save the "big guns" in case you need them down the road.

Congrats on the diagnosis!!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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3 years 7 months ago #50375 by sammyy
thanks for the help and info out here, figured I'd toss out an update...

I had the tumor removed on 12/4, urologist was pretty happy with the results.

confirmed low grade T1, early stage.

he decided follow up treatment wasn't needed, just the standard 3 month check ups for a year, followed by twice a year, followed by once a year.

in a way I guess I am glad he decided that BCG or Mitomycin wasn't needed.... nut then gain I had that better safe that sorry thought too....


40 year old male.
T1 Low Grade
Turbt done on 12-4-15

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3 years 9 months ago #49919 by GKLINE
Hello
And I'm sorry to see you here. But welcome to the club.
I had an ultrasound first and then, before anything else, I was sent to a urologist who walked into the small exam room with this opening line, "So.... you have cancer!"
I guess they don't sit you down and break it to you slowly anymore.

But, as they watch the cystoscope video, they can tell by the shape of the tumor if it is cancer or not. So it is usually a good guess on their part.

After the TURB confirms this, and they remove the tumor, they will do another TURB to see if there are anyremaining cancer cells in the tissue.

And then you will be put on a course of recovery. Hopefully you will be able to have BCG treatments that will save you from major bladder removal surgery.
But even if you have to go the removal route, you will still be OK. I had mine taken out seven years ago and I'm still here, and living fine.

Best of luck to you

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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3 years 9 months ago #49918 by sammyy
very true.

I just feel 'weird'... close family and a friend or two know about the bloody urine and clot and that I had the cysto done to 'check' the lump in the ct scan.....

but I almost feel like, when they ask how it went and what they found, that using the 'C' word at the moment isn't right.... that they might remove it and have it be nothing and then i'll have to explain why I said it was 'C' and when (if) it turns out to be nothing after the pathologists do their thing.... even though I know what the urologist is saying......

just a weird spot to be in and I cant wait until it gets removed and they know for sure exactly what is going... TURB is on 12/4..... three long weeks......

I do have to say, glad I found this place, a lot of very very good (and understandable) info here!


40 year old male.
T1 Low Grade
Turbt done on 12-4-15

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