Dear wifeofmike,
I'm glad you found the forum but am sorry for the circumstances that bring you here. The contributors have been very helpful to me as the wife.
Getting a second opinion or surgical treatment, preferably from a major cancer treatment center that sees lots of bladder cancer patients, is a good decision.
My husband's diagnosis was non-muscle invasion carcinoma in situ (CIS) and his treatment so far has included three TURBT's and 9 rounds of BCG.
We were going to work with a local urologist in our rural county who performed the initial cystoscopy. While that doctor was on a planned absence before the first scheduled TURBT, we learned more about treatment of bladder cancer and realized we needed a specialist.
We gladly drive two hours one way to Johns Hopkins and have full confidence in his bladder cancer specialist. Choosing the best care provider for us has provided me with peace of mind.
It may be the best thing for your husband's treatment that you will be working with a new doctor, hopefully one that treats lots of bladder cancer patients.
Best wishes for you and your husband.
Husband's journey:
01/2015 1st cystoscopy
03&04/2015 TURBTs-CIS
07/2015 Finished BCGx6
08/2015 biopsy-BENIGN!
10/2015 Finished BCGx3
12/2015 Cysto, redness
01/2016 TURBT, Benign
04/2016 Cysto
05/2016 Finished BCGx3
07&11/2016 Cysto's
1/2017 Finished BCGx3
2/2017 Cysto, redness
3/2017 TURBT, Cysto due 9/2017