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3 years 4 months ago #49040 by sara.anne
Sounds as if your urologist is really on top of this. There have been studies that have shown that even at the very best cancer centers, the first resection can often miss. A second resection should be done much more often than it it....I was fortunate in that my doctor did a second one and the diagnosis changed dramatically! The second time, the urologist has a much better idea of where the problem areas are and can do a much more thorough job.

You are in good hands!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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The following user(s) said Thank You: gord55

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3 years 4 months ago #49039 by gord55
thanks Anne,this has been a real shakeup to me.
i live in Alberta Canada,so treatment in the USA is very expensive, thankfully my urologist is recommended highly by my family DR.he was concerned as the pathology report missed the muscle tissue somehow, am scheduled for another resection in three weeks to double check, and i am seeing the next specialist at the Edmonton cancer clinic before that.
thanks for all the concern and information. i will be in touch regular

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3 years 4 months ago #49037 by sara.anne
Sorry that you have to join our relatively "exclusive" club! Your urologist appears to be right on the money. A second opinion when you have been given such a recommendation is an absolute must. And you should get it at a center that sees lots of bladder cancer cases, even if it means a bit of travel. If you tell us where you are located, others here may have suggestions for you. Also, on our Home Page, there is a Treatment Center Finder that you can use to find such a place near you.

Other than the fact that it is multifocal (appearing in more than one location), you should also ask if the pathology report shows whether it is still localized to the bladder lining, has gone into the underlying layers, or into the muscle. In fact, you should have a copy of the pathology report. This information should help you, and your doctors, come to a decision about the best course of action.

Please remember that there is a lot that can be done for bladder cancer. IF it is indeed necessary to have your bladder removed, this can be curative. Many people live full and satisfying lives without a bladder. Should you have your bladder removed, there are three general types of diversions and you will want to explore all of them to chose which is best for you. But first, get that second opinion!!

Wishing you all the best

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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3 years 4 months ago #49034 by gord55
i was just diagnosed with with urothelial multifocal carcinoma 3 hours ago,.i was not expecting good news as i was called in as soon as my results were in
i am going to a second opinion this week,however my urologist recommends a complete bladder removal to stop the spread? very healthy, typical body-30 lbs overweight
the second opinion is his recommendation. i apologise if my terms are not correct,it is a lot to take in

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