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fathers diagnosis

3 years 5 months ago #49024 by rebeccamb
Thank you so much for your response I needed that before I fell asleep that offers much piece if mind . He is a strong man and we are right here beside him. I will keep this updated x

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3 years 5 months ago #49023 by Cynthia
So sorry you need to be here but welcome. I have lived very well with one kidney and no bladder for about seven years now. Mvac is the big guns of bladder cancer chemo it will be hard but doable. As for the extent of lymph node involvement until they get in and have the pathology report in hand you will not know. The hope will be that once your dad heals from surgery the worst will be over. We are here if you need us and lplease keep us updated.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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3 years 5 months ago #49022 by sara.anne
Sounds as if he is in good hands!! We have lots of people from all over join us here...and you are welcome as well.

I was in Dublin last September....lovely city!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: rebeccamb

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3 years 5 months ago #49021 by rebeccamb
I am in Dublin Ireland . I know this is us forum but it seemed a good place to go . The consultant is an esteemed oncologist of the urinary area so I am hoping this is best. He has myself my two sisters and my mum by his side.
I am just wondering why they can't definitely tell us if there is lymph gland involvement . Is there many cases of bladder cancer spreading to a ureter ?
Thank you for responding X

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3 years 5 months ago #49019 by sara.anne
If you have read many of the posts on this Forum, you will know that our motto is
"GET A SECOND OPINION."
You father's case is not routine, garden variety. He wants to be sure that he is getting the absolute best advice and treatment possible. IF he is at a major center for bladder cancer treatment, that is great; if not, he needs to get a second opinion ASAP at one. The best result would be that they concur with the treatment plan his current doc is proposing. The next best result would be that if it is NOT the best, they could recommend something better.

Please let us know where he is located geographically and where he is being treated. Someone may have personal knowledge of bladder cancer centers in his area.

Your father is lucky to have you by his side.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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3 years 5 months ago - 3 years 5 months ago #49018 by rebeccamb
Hey guys
Really great to have somewhere to talk and I hope I can really get something from this. My father Is 60 years old. In great shape and always well . One month ago he started to pass clots in his urine and was reffered to a urologist.
He was admitted and had a ct scan and a scope done. They found a polyp on his bladder and knew immediately it was malignant . We went home and we're told to come back in two weeks. He advised that 4/5 times it has not progressed past the lining.
Last week we went in for results. He said although it came back as superficial his ct scan showed bladder wall thickening and they think it was a problem with the sample and it has muscle invaded. It is on the cuff of his bladder blocking his ureter we knew this as they could not get a stent in and had to go in from the side.
We were then told to wait for an on ocologist appt
We went today and he said it is 5cm tumour and is starting to go up his ureter . He said the lymph node close by is enlarged and is suspicious but not verified as involved. It also came back high grade he said his treatment was 6 rounds of mvac followed by removal of his kidney and the cuff of his bladder.
Fortunately we have never had a history of cancer in our family but also it means we have no idea what we aare dealing with. I have no idea where we stand of what to expect .
He did said the treatment was definitive and he felt he could be cured but has anyone had a kidney removal or could tell me more about mvac ? My dad is pretty old school and stoic about it all and we are all falling apart he also has no idea how to get on the Internet so would love to give him more info first hand .
Any information or interpretation of stage of this would be amazing
Thank you
Rebecca X

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