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Cystoscopy was done 2 days ago & Tumor found.

3 years 6 months ago #48896 by GKLINE
Oh the male attitude will drive spouses crazy!!! I am the male species, so I know this all too well. ha ha
And here I have a comedy break form the serious cancer thing:
For your whole life, bathroom humor has been frowned upon by polite society.
From cancer on..... Bathroom and incontinence humor is absolutely approved by this site. As a matter of fact.... it is encouraged and necessary.
Larry the Cable guy says "Lord, I apologize for that joke. But it was funny, I don't care who you are!!!!!"

To all you survivors out there...... Incontinence will either become funny or it will make you go crazy! Either way you are gonna have it. Deal with it and laugh at yourself. It will help you grow up.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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3 years 6 months ago #48893 by Aktommy
Ok so I just had my TURBT and I am sitting on the hospital toilet trying to urinate. This feeling of having to go to the bathroom is reallllly irritating. I've gone a few times here at the hospital but little amounts and lots of pinkish blood a and a few clots. My wife pulled the vehicle up front but I'm sitting on the toilet trying to go again.

Good news is my doc thinks the tumor was just part of my prostate extending into the bladder, we will wait and see once we get the pathology test in.

So no catheter, hurts to pee, blood in urine as expected and the sensation of needing to urinate but not much if anything coming out. I think these are normal sensations.

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3 years 6 months ago #48892 by MadLove
George,

Credible explanation for the night owl posting. The spouse took the BCG bladder out to a "work" function 30 hours after the first instillation and learned that it is not as tolerant of his favorite cold beverages as the post TURBT bladder. He claims moderation was the rule but felt like he was reliving some of his bachelor days while on shore leave. Lesson learned (and all is well.)

Husband's journey:
01/2015 1st cystoscopy
03&04/2015 TURBTs-CIS
07/2015 Finished BCGx6
08/2015 biopsy-BENIGN!
10/2015 Finished BCGx3
12/2015 Cysto, redness
01/2016 TURBT, Benign
04/2016 Cysto
05/2016 Finished BCGx3
07&11/2016 Cysto's
1/2017 Finished BCGx3
2/2017 Cysto, redness
3/2017 TURBT, Cysto...

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3 years 6 months ago #48891 by Theoks
Just want to reiterate how important it is to be treated by an experienced bladder cancer specialist. We live in a rural area 300 miles away from a major hospital. Started local treatment but the switched to an academic medical center . It meant lots of travel but is worth it . Not only will you have the experience of a specialist who has seen lots of cases like yours but the nurses give lots of tips and other suggestions to make your life easier . They also let you know when and if to be concerned . We are 2 years into the " journey" and doing ok

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3 years 6 months ago #48890 by GKLINE
Holy cow!
I first have to say..... What are you two doing up at such an hour! I'm guessing that you were both on this forum at 3am!
From now on.... My advice is to learn to get some rest! You are BOTH going to need it!
But, I do have an anicdote for you both.
No matter how strong you are.... hearing cancer will turn your muscle to jelly. And that is normal. But you will find a whole new kind of strength, believe me.
Don't worry about the catheter. You will have one.... but only for a while. And it won't really bother you. I promise.

There will be lots of challenges to face. And you will pass all of the tests. You will be afraid. And that is normal. But when yo look back on all of this.... You will be amazed at how much you learned about yourself during the trip.

Broken bones, torn ligaments, accidents, and other injuries will fade in importance when you think of how you beat cancer. And here's to that!

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]
The following user(s) said Thank You: Aktommy

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3 years 6 months ago #48889 by MadLove
As a care giver I know the anticipation is tough and can only imagine how it must feel as the one about to have the procedure. The good news is your having the TURBT so quickly after your cystoscopy even if it hadn't allowed much time for getting questions asked.

For both the TURBT's, my husband did wake up with a catheter. I think part of the recovery room time with a cath allows staff to monitor the output. I sat with him in recovery for about an hour the second time and a bit longer the first time.

For both TURBT recoveries, three prescriptions were written. One was an antibiotic (Cipro) and two were for pain management (Percocet and Pyridium). The Pyridium treats bladder pain/burning and sense of urgency. It turns urine into an orange color which may stain surfaces if not wiped up.

The Pyridium could not be given while in recovery (so staff could monitor normal output). There was a hospital pharmacy so we were able to have all prescriptions filled and start the Pyridium right after discharge. I don't know if he could notice bladder discomfort then because he was distracted by the discomfort of the catheter. The antibiotic started the next day as he received IV antibiotic with the procedure and the Percocet was started 4-6 hours after discharge as needed.

I will be thinking about you and a speedy recovery from your procedure. And no heavy lifting for a while! I recall instructions of nothing over 10 pounds for a while. My husband was happy to have a doctor's note excusing him from trash and laundry duty.

Best wishes. Will look forward to an update when you are able and willing to share.

Husband's journey:
01/2015 1st cystoscopy
03&04/2015 TURBTs-CIS
07/2015 Finished BCGx6
08/2015 biopsy-BENIGN!
10/2015 Finished BCGx3
12/2015 Cysto, redness
01/2016 TURBT, Benign
04/2016 Cysto
05/2016 Finished BCGx3
07&11/2016 Cysto's
1/2017 Finished BCGx3
2/2017 Cysto, redness
3/2017 TURBT, Cysto...
The following user(s) said Thank You: Aktommy

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