Hi,Jayton I am in a similar situation as you, however as of yet my cytology has come back as suspicious and not positive. 6 cystos and ureterscopes since 02/14 have not been able to see any tumors. I have some minimal ureter wall thickening that may or may not be cancer. The recommendation is to have the kidney and ureter removed for best chance of a cure. I am scheduled to have same removed on 06/29/15.
You have had quite a journey with bladder cancer and I am sorry about this new chapter. We have had a few people over the years with the same type of situation and it has been handled in different ways. One had it on only one side and had the kidney and ureter removed and did well. I am living proof that one can do well with one kidney following Radical Cystectomy. One of my friends has had BCG treatments installed under a general anesthesia as his is also in the kidney I believe they use a tube through the kidney. He has been clear of the CIS for about five years. A second opinion from a center that handles a high volume of bladder cancer is always a good idea when dealing with anything that is not usually seen by most Urologists. Please let us know what you find out from your doctor.
T2 g3 CIS 8/04
Chemotherapy & Radiation 10/04-12/04
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society