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Blood in urine, how likely is bladder cancer?

4 years 9 months ago #48072 by Sdca1
Thanks, Alan. The 1cm size was something the urologist said casually when doing the cystoscopy "about 1 cm" so I think it's just his estimation. I really am anxious to get the TURB and pathology results to see exactly what I'm dealing with.

Fighterm, good luck to you on the 29th! I am still trying to schedule my TURB.

In general to anyone - how long after cystoscopy reveals a tumor do you have a TURB? I would think it's urgent to have one quickly. My cystoscopy was Wednesday, it's now Saturday and Monday is a holiday. Despite playing phone tag with the scheduler, I still don't have a date to have this done. I'm worried that waiting too long will allow the tumor to grow!

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4 years 9 months ago - 4 years 9 months ago #48067 by Alan
SD,

As others have stated you just have wait for the TURB and pathology report. The good news is 1 CM is fairly small (usually <3CM is the break)-just wanted to give you some positive info while waiting.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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4 years 9 months ago #48064 by sara.anne
Sounds as if you are in a great place for treatment!

Urine cytology is a bit of a mixed bag. It has a reputation for showing both false positives (says it is cancer when it isn't) or missing it altogether. Therefore it is not possible to say that it represents more aggressive disease. Most of our urologists do urine samples, but it is only good with all the other diagnostic tests that are done.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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4 years 9 months ago #48061 by fighterm
I had a ct scan in March and in Oct of 2014. They missed my tcc in March, at least did not mention it in the report. Only in Oct they noticed it and sent me to a uro. My tumor looked papillary. I am having a turb on Jan 29. I don't know the size yet.

66yo female, 1992-Non-Hodg. lymphoma(NHL) high grade, chemo, rads, 2007 NHL, low grade, rads, 2013 NHL low grade, stage 4, chemo till Jan 2015; 2014 TCC, first Turb 01/29/2015.

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4 years 9 months ago #48057 by Sdca1
Thanks, Sara Anne, you made me rest a little easier, but honestly I am going to be pretty freaked out until the pathology report. Working on getting the TURB scheduled for hopefully next week, and then the week after I have the consult at Moores Cancer Center in San Diego. Any experience or familiarity with this center? It's the only NCI center close to me (other than LA but that would be a 2-3 hour drive). I am also waiting to see results of a urine cytology test the urologist took the day of the cysto. I've read that a positive urine cytology is indicative of more aggressive disease, is that true??

Thanks so much for your replies, I really appreciate the support during this extremely scary time.

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4 years 9 months ago #48056 by sara.anne
The "cauliflower" type tumor is the best kind to have! It sounds like transitional cell papillary carcinoma, which is usually low grade (ie, slow growing). Of course, until you have the TURB and get the pathology report back you won't know exactly. But for now, try not to panic ...easy for me to say!

Ir is also very good that you have a consult at a major center. Your urologist is going to be your "best friend" for a long time and you want to find someone with whom you feel comfortable and in whom you have confidence. It is much easier to make the change early. Which cancer center are you going to?

Please let us know how this all goes

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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