I had a cystoscopy yesterday, and as I feared the urologist found a tumor. He said it was about 1 cm and "cauliflower" like. I'm still trying to schedule the TURB with his office, but in the mean time I scheduled a consultation with another doctor who works at an NCI center and specializes in bladder cancer. I was pleased when I got this appointment because my uro, while he is a good physician, he seems really rushed and I think he deals with mostly non-oncology urological issues (but he does have experience doing the TURBS). He also mentioned that the tumor is close to a ureter opening so when he removes the tumor he will have to put a uretal stent in so scar tissue doesn't block it - has anyone heard of this?
Anyway, I've pretty much been numb since getting the news yesterday, and all I can think of is "the worst". I know many bladder cancers are treatable, but u til I find out exactly what kind I have (stage and grade) I am VERY nervous about having an aggressive or muscle invasive tumor. One specific thing I'm curious about is that in November I had a CT scan that showed no cancer but showed a "diverticulum". My uro said he didn't see a diverticulum, but the tumor is in the place the scan report said it was so could be blocking it? This makes me wonder if the scan readers incorrectly identified a tumor as a diverticula? Or maybe the tumor is growing out of the diverticula? If so, I've read these are much more challenging to treat. Anyway, I could go crazy with these details and wondering "what if", but I guess I just need to wait for the TURB and pathology - I just really hope mine can be treated being only 41 years old I don't want the end to be near yet!!