Hi Niklas,
Thank you for your response, and congratulations on your recovery.
Besides the blood in the urine I am also bleeding from the rectum. This is also spontaneous and not associated with constipation. It just happens. I am having a colonoscopy on the 9th.
As far as other symptoms I have painful urination, frequency, and 'dribbling' - mostly noticed when I wake up. I am now having some pain in the back, on the left side. Stones have been ruled out. I don't have an appetite and would probably weigh less if I wasn't forcing myself to eat.
My brother had cancer of the kidneys. He passed some years ago. It was well established before he became aware of it.
I have had bladder problems for as long as I can remember, about 4 yeas. I was told I had interstitial cystitis but now I am told that it's a catch-all diagnosis.
I also have pain. Any pressure, sitting, standing, bending, all put pressure on the perennial floor. It's very tender down there. Most recently, UTI ruled out. Last week I couldn't move for the pain. Heat helped.
This is all speculation I know. I just heard that they are moving the cystoscopy up. I'll post the findings. I've done some research - who hasn't - and I seem to have about all the symptoms. I should just wait and see. I am also waiting for cytology results to come back.
Thanks again