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CIS Maintenance Treatment

4 years 1 week ago #47569 by raider
Thanks for responding Alan!

I will trust that just doing a cystoscopy / cytology every 3 months is the right protocol for my situation. Like you I never drink soda nor have I for a long time, my diet is very good and I now have incorporated juicing with mixed berries and Kale. I drink alcohol but not in excess.

Stay healthy buddy! thanks again

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4 years 1 week ago - 4 years 1 week ago #47558 by Alan
Raider,

My URO did 6 BCG's then a rest of 6 weeks then another 6 and that was it! He studied under Dr. Lamm also. There are varied protocols. My situation might have as much to do with catching it early-size was .5 CM-about the size of a pencil eraser. Also, everytime there is an installation or cystoscope etc there are small but real risks of problems. Hence the 6 on 6 off then 6 more. It bothered me for a few months as so many have a different maintenance regimen but, you have to trust something or someone! I did quit any carbonated drinks that can irritate the urinary system (think of a dirty penny in coke after about 12 hours-it is clean). I quit any alcohol (I didn't drink much before)as it also is an irritant. I also include dark berries (pomegranate or blueberries) via drink or berry as they are high in anti oxidants. To top it off I scheduled my yearly scope off by 6 months so with my regular physical we do a cytology as another non invasive test. Who knows what maintenance is best? Let's trust you are done! Get back on the golf course!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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4 years 1 week ago #47557 by Alan
Raider,

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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4 years 2 weeks ago #47554 by raider
Thanks Sara Anne!

I'm optimistic to stay clear and I already have my next cystoscopy scheduled in 3 months . My symptoms are so much improved since I was diognosed and treated.

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4 years 2 weeks ago #47553 by sara.anne
Nicke is correct that the other, less effective drugs, are not replacements for BCG in a maintenance regimine. You have the advantage of having had some BCG. Now the most important thing is to be scrupulous about getting to your urologist for the 3 months checkups and reporting any unusual symptoms ASAP. The odds are good that you will be fine!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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4 years 2 weeks ago #47552 by raider
Thanks Nicke!

One part of me is happy to not do maintenance but the other part of me thinks we should just do it per what seems to be the protocol.

I guess we can go another 3 months and see what the cystoscopy and cytology shows then

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