I will trust that just doing a cystoscopy / cytology every 3 months is the right protocol for my situation. Like you I never drink soda nor have I for a long time, my diet is very good and I now have incorporated juicing with mixed berries and Kale. I drink alcohol but not in excess.
5 years 4 months ago - 5 years 4 months ago#47558by Alan
My URO did 6 BCG's then a rest of 6 weeks then another 6 and that was it! He studied under Dr. Lamm also. There are varied protocols. My situation might have as much to do with catching it early-size was .5 CM-about the size of a pencil eraser. Also, everytime there is an installation or cystoscope etc there are small but real risks of problems. Hence the 6 on 6 off then 6 more. It bothered me for a few months as so many have a different maintenance regimen but, you have to trust something or someone! I did quit any carbonated drinks that can irritate the urinary system (think of a dirty penny in coke after about 12 hours-it is clean). I quit any alcohol (I didn't drink much before)as it also is an irritant. I also include dark berries (pomegranate or blueberries) via drink or berry as they are high in anti oxidants. To top it off I scheduled my yearly scope off by 6 months so with my regular physical we do a cytology as another non invasive test. Who knows what maintenance is best? Let's trust you are done! Get back on the golf course!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Nicke is correct that the other, less effective drugs, are not replacements for BCG in a maintenance regimine. You have the advantage of having had some BCG. Now the most important thing is to be scrupulous about getting to your urologist for the 3 months checkups and reporting any unusual symptoms ASAP. The odds are good that you will be fine!!
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society