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Diagnosed with PUNLMP in July, it is back

4 years 4 days ago #47733 by fighterm
Is it the same as cauterization? My uro mentioned that he will shave it off and then cauterize. No bcg or myto. I will have turn next month.

66yo female, 1992-Non-Hodg. lymphoma(NHL) high grade, chemo, rads, 2007 NHL, low grade, rads, 2013 NHL low grade, stage 4, chemo till Jan 2015; 2014 TCC, first Turb 01/29/2015.

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4 years 4 days ago #47730 by apb
MD Anderson has scheduled me for blue light cystoscopy. They have requested the specimen from July to redo the pathology. Bottom line, either the pathology was wrong or the previous surgeon left some behind. They feel with blue light cystoscopy they can get it all, if it is reconfirmed to be PUNLMP, no Mytomacin C nor BCG - they are that confident in blue light.

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4 years 2 weeks ago #47592 by apb
Getting myself to MD Anderson for second opinion... Hopefully should be seen next week. My urologist has me scheduled for surgery in 2 weeks, so not sure which way I will end up going.

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4 years 3 weeks ago #47510 by fighterm
I think that if you don't have to remove your bladder it is a better form of BC.
You can live for 20 years with low grade superficial BC. I am targeting this number. And I am fighting two cancers.

66yo female, 1992-Non-Hodg. lymphoma(NHL) high grade, chemo, rads, 2007 NHL, low grade, rads, 2013 NHL low grade, stage 4, chemo till Jan 2015; 2014 TCC, first Turb 01/29/2015.

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4 years 3 weeks ago #47504 by GKLINE
After all these years I didn't know there was a best form of bc. :laugh:

But seriously, There is no difference here.....cancer is cancer and we want you to get well. As Sara Ann says, You are in the best place to get second opinions on bc. Follow their protocol and you will be like us.... living a normal life and giving hope to other "SCARED" cancer patients who need a shoulder.

Get Well, and keep us in the loop.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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4 years 3 weeks ago #47496 by sara.anne
Yes, you have the "best" type of bladder cancer, if you have to have it. However,
you are fully entitled to scream and yell and curse all you want. We all have done it!! We are here to listen!

SA

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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