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first cystoscopy on Nov 10.

4 years 1 month ago - 4 years 1 month ago #47411 by Alan
I am not a doctor but, many grading sites consider <3CM as small and >3CM as larger. Mine was tiny at .5CM (about the size of an eraser). The real question would be the grade (slow or fast growing). The difficulty is probably getting treatment with chemo exposing the blood system with a biopsy (I am just guessing). It might be another question to ask your medical team.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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4 years 1 month ago #47406 by fighterm
I have a question. What is considered a small tumor? Is a thumbnail size small or medium? How many years it takes to grow this size tumor if it's a low grade? My questions come from the idea that the tumor can grow very slowly for many years, yet it can come back after surgery very quickly.

66yo female, 1992-Non-Hodg. lymphoma(NHL) high grade, chemo, rads, 2007 NHL, low grade, rads, 2013 NHL low grade, stage 4, chemo till Jan 2015; 2014 TCC, first Turb 01/29/2015.

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4 years 1 month ago #47393 by Alan
Makes sense to me. My heart goes out to you fighting two battles!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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4 years 1 month ago #47392 by fighterm
Thanks a lot for your reply.
I need 3 more months to finish my chemo for lymphoma. As my lymphocytes are malignant they kill them off and I have almost no immunity during the treatment. After my treatment I should recover some immunity but not fully. My treatment for lymphoma goes well, the lymphoid masses shrank considerably. That's how they noticed this tcc on the ct scan, because this mass in the bladder did not shrink. I think they don't give BCG to people with poor immunity, because the bacteria can do harm instead. I don't know if they have something else.

66yo female, 1992-Non-Hodg. lymphoma(NHL) high grade, chemo, rads, 2007 NHL, low grade, rads, 2013 NHL low grade, stage 4, chemo till Jan 2015; 2014 TCC, first Turb 01/29/2015.

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4 years 1 month ago #47391 by Alan
I can't add much from Sara Anne but, I'd make sure all of your doctors are talking with each other being two different cancers. BCG is a wonderful drug but your chemo probably has caused your URO's response of no need for now. If you are near a large teaching hospital or major med center I wouldn't rule that action out. How long out before he can do a biopsy would be the key question? FWIW I had the same type of tumor, papillary only a little smaller.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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4 years 1 month ago - 4 years 1 month ago #47388 by fighterm
Today had the cystoscopy. I saw the tumor on the screen. It looked like a sea flower. I asked how big it was the doc said about 1.5 cm. When I finish my chemo for lymphoma I will have the shaving procedure and biopsy. I will not get bcg, the doc said no need.It bothers me. Do they have completely dead BCG that the immuno compromised people can use?

66yo female, 1992-Non-Hodg. lymphoma(NHL) high grade, chemo, rads, 2007 NHL, low grade, rads, 2013 NHL low grade, stage 4, chemo till Jan 2015; 2014 TCC, first Turb 01/29/2015.

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