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Newly Diagnosed

4 years 1 month ago #47273 by sara.anne
Welcome to our club, that I know you did not want to join!

You are headed down a path familiar to many of us. Your urololgist will be performing a TURB (transurethral resection of the bladder) during which he will remove the papillomas...little mushroom-like tumors extending into the bladder and he will take lots of samples of the bladder lining to send to the pathology lab. This is usually done on an outpatient basis under a light general anesthesia. It will only be AFTER the pathology report comes back that the urologist will know precisely what you might be facing.

He will most likely wash the bladder after the TURB with a mitomycin ...which is a chemo agent. Since it will only be a single wash and confined to the bladder, there are no systemic effects as with traditional chemotherapy.

Once you have the results from the biopsies, you will better know what the next step may be. Just know that there are many of us who have been where you are and are so far cancer-free (I am 6 years1!) and doing well.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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4 years 1 month ago #47269 by suziech
Hi everyone. I am a blind Christian woman that has just been newly diagnosed with Bladder Cancer. My symptoms have been blood and blood clots in my urine along with frequent urination, low back pain and discomfort in the abdomen and bladder area. My doctor found the tumor in a CTscan he had scheduled for me. I saw the Urologist this past Thursday for a cystoscopy and that did indeed confirm the tumor, it is in the lining of the all of the bladder, I also have additional Papilomas near it. My Urologist informed me that she will perform surgery to remove the tumor and surrounding area and if needed put in a stent, what is this stent for? She also informed me that she will administer an anti-cancer medication or chemotherapy that does not cause your hair to fall out, is there a new medication out that does this? I am not completely clear on everything she told me, I was still in shock when she informed that I have bladder cancer. I have a friend from church that took me to my appointment, but I had her wait out in the waiting room. The surgery I believe is suppose to be outpatient. My Urologist is going to be calling me next week to schedule the surgery date. I am currently taking an anti-biotic to clear up a UTI. God will get me through this though and I put all my trust in him.

Blessings
Suzie

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