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miserable about life

5 years 3 weeks ago #47059 by Flamenco.
Hi Tabby,
Sorry you are having such a rough time.I would definitely try and get a different urologist if that is possible. Maybe if you see a psychiatrist ( psychologist?) they would be able to give you some help in finding one who understands a little that treating a patient means treating the body and mind, and that constant pain causes depression.
Please keep in touch with us. Where are you? there may be another member who can recommend someone in your area?
Diane
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5 years 3 weeks ago #47056 by sara.anne
Wow, you certainly have been hit with a lot. The GOOD news, the type of bladder cancer you have is about the best there is, but yes...it does tend to come back. I have not heard of having interstial cystitis and bladder cancer, but suppsed it could happen. I wonder if the symtptoms you are having could also be from bladder cancer?

IF you do not feel comfortalbe with the urologist, is it possible to find a new one? With your age and diagnosis, you really need a specialist who is very famiiar with it and who can do a really thorough diagnosis. It is also only natural that you will be feeling depressed and a consult with a psychiatrist might help a lot.

Sorry for the poor typing jub....am traveling and.....this keyboard is so tiny

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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5 years 3 weeks ago #47053 by tabbysbadblad
Hi. I'm 29 years old. I kept having bladder and kidney infections and finally went to a Urologist. On 7/10/14 I had a stage 1 non-invasive bladder cancer tumor removed. My symptoms were pretty much gone and now they are back full force. I'm laying here with a heating pad hoping the AZO will kick in after I just sat in a scolding hot bath to help my lower back pain and burning in my urethra. (TMI) I go back on 10/24 to have a cystoscope performed to see if the cancer has came back. (There is a 50 % chance). I also found out that I have interstitial cystitis also. My doctor is very cold hearted and basically told me this is something I'm going to have the rest of my life. That I need to learn how to manage my symptoms. After having endomitriosis and a total hysterectomy and now all of this I just feel bitter about life. I know I could have it a lot worse , but I'm so tired of hurting and just want to be normal again. I'm very depressed and cry all the time. Its too the point where it is affecting my marriage and sex life. I never want to go anywhere with my husband and daughter because always hurting or depressed. I just keep thinking why me and what else? Any advice or words of encouragement would be great. I don't have much support family or friend wise. I do go to church but no one I know had been through this or can relate. Thank you.

Tabby

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