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Just curios if this could mean more..

5 years 1 month ago #46658 by Cindy B.
In Oct of 2010 I went through something very similar. They kept telling me it must be a UTI. I went through this for 1 1/2 years before they finally sent me to a urologist who found that I had one tumor the size of a quarter and two the size of a dime. They were all removed during surgery and thankfully came back as Stage 1.

I'm sure waiting the 1 1/2 years to figure this out does mean that the tumors continued to grow. My doctor didn't seem concerned about the size as much as whether it had breached the wall of the bladder, which thankfully it hadn't. Not trying to tell you what to do, but talk to your doctor about their ideas on starting BCG treatments for your husband after surgery.

My doctor didn't feel it was necessary. And now 3 1/2 years later, during one of my regular checks-up my doctor found that the tumors had returned. I have just had another surgery and am now getting ready to through BCG treatments.

Research I've been doing has shown where BCG treatments can prolong reoccurrence of bladder tumors.

Do a lot of research and ask a lot of questions.

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5 years 1 month ago - 5 years 1 month ago #46657 by GKLINE
Hello
The tumor size is really not the issue. Becasue they are going to remove the tumor during the TURB. The real queston is weather the tumor has invaded the muscle tissue and that is what the second TURB is for.
Now is the time for calm calculated thought. Bring a notebook to the Dr. visit. You will forget so much during the emotional visit that the notebook is a handy refrence.
But the biggest thing is to NOT FREAK OUT!!!! It is very easy for me to write and very hard to do. I know..... I Freaked out Too!!!!
I also had lots of tumors that looked massive. I also had little flecks that came out during urination for almost a year before I saw the Dr. and I'm still here! So here is your plan.
Get a GREAT bc Dr.
Get a Great Hospital that knows their stuff..... Cleveland Clinic
Become a team for bc destruction with your husband.
Follow the bc protocol. Two TURB surgeries, Pathology, followed by BCG maintainance or Bladder removal surgery. (this is not the end. A lot of us had it years ago and we are still here)
Laugh a LOT together! Cry some together. And never look down and give up on this pesky little varmint.

OH! AND come back here anytime;
To tell your story
Ask questions
Bitch and complaign
Cry a little
Ask embarassing questions. We all know that dignity goes out the window when you enter the urologists office.


We will talk in the future. And we will help in any way we can

Sincerely
George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]
The following user(s) said Thank You: lorrainevalentine

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5 years 1 month ago #46655 by Alan
I have no idea what size is on these things, I was told mine was .5CM which is about the size of an eraser head on a pencil which is small. The important item now will be the path report and the grade, high (aggressive) or low. Also, how far the tumor has gone or stage. While waiting is no fun at least you are working toward a .

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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5 years 1 month ago #46649 by melmac95
We live in Ohio.. The Urologist that my husband has is experienced with bc so that is great news for us. I dont know theexact measurement of the tumor but Dr did say the size of a quarter. Not sure Iif that is considered small or large..

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5 years 1 month ago #46647 by Alan
We are sorry you are here but, glad you found us. Yes, finding a tumor after passing blood a year ago is not good. However, it appears to have identified the problem so now you can go attack it!

The IVP test from what I understand is a kidney test which is good to rule out a problem there. A CT scan is often done for of all the torso-most of us had had one.

TURP and/or TURB for bladder and prostate is important. As your URO has I'd a tumor in the bladder you want someone that does a lot of bladder cancer as many see mostly prostate problems. Many of us would encourage a second opinion as this can be a sneaky disease. Don't be surprised if a second TUR is done also to verify the path reports. I would be looking at a large teaching hospital or cancer center than has a big practice in BC assuming your insurance will allow this. Where do you live? Someone on this board can likely recommend one if that works.

Keep asking, someone will have answers or help.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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5 years 1 month ago #46645 by melmac95
Good Morning to all.
This is my 2nd time posting here and still trying to give myself answers.
So I will start at the very beginning...

Last year in August my husband urinated blood,and this happened just 1 time.
Then on July 5th he urinated blood several times plus also passed blood clots. It went away then returned Monday evening again about 3-4 times. Been normal since then.
Went to the er on July 5th and they did a urine test and the doctor said before the results were back that it was most likely an infection, put him on antibiotics and told him to see his regular doctor in the next 2 days.
He went to his doctor on Monday July 7th and doctor said he had no infection so sent him to urologist. Dr ordered IVP test which came back normal for the most part, found that the prostate is slightly enlarged. Did a scope test to look at his bladder where he found that my husband has
a tumor the size of a quarter. He is schedules to have a TURP surgery on August 4th.

My question is with this problem showing up a year ago and nothing being doe til now, does that mean that things are more progressed ?
Also with the tumor being the size of a quarter, is that consider small or large ?

Thank you all for taking the time to read this, I am an emotional mess over all this.

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