Just curios if this could mean more..

9 years 8 months ago #46726 by Cindy B.
Replied by Cindy B. on topic Just curios if this could mean more..
A lot of it will depend on the doctor and how aggressive they are in wanting to treat it. Mine was considered superficial the first time and my doctor chose not to do treatments. It came back in 3 1/2 years. This time I will be going through BCG treatments. I start them next Tuesday.

I would definitely talk to your doctor about treatments. From what I've read, BCG treatments can prolong the reoccurrence of bladder cancer.

Praying for good results on Monday. Hope your husband is doing ok.

Cindy

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9 years 8 months ago #46725 by melmac95
Replied by melmac95 on topic Just curios if this could mean more..
Thank you everyone for all the replies and information. As we know right now it is superficial, we will know more on Monday when we have to go into the drs for the path report... Just curious, with superficial do drs usually recommend treatment or is it just the regular 3 month check ups ?

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9 years 8 months ago #46723 by Flamenco.
Replied by Flamenco. on topic Just curios if this could mean more..
Hi and welcome - re your question about diagnosis delay, whilst early diagnosis is generally linked to a more positive outcome with bladder cáncer,( hence one of the websites main aims is to draw awareness to the symptoms of this type of cáncer)don·t stress out too much on the delay factor- the important thing now is that you know what you are fighting, you sound as though your medical team are getting down to sort things out now, and you have joined a group of people who have been there, done it and got the T-shirt.I was diagnosed in 2006 with superficial blc,following an 8 month delay in diagnosis,and barring a couple of small bumps in the road along the way, am still here,work fulltime, love my life, and have done things I probably never would have done had this disease not made me more aware of how lucky I am.
Diane
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9 years 8 months ago #46702 by Cindy B.
Replied by Cindy B. on topic Just curios if this could mean more..
Superficial is good. Probably means only Stage 1. Won't know for sure until pathology comes back. But that's what we'll pray for. I had a catheter when I woke up from surgery this time, but that was because they had the mitomycin in me and it had to stay there for 45 minutes. They took it out before I left the hospital and I was able to go fine. The side effects didn't start until several days later.

And your husband may not have any. Everyone is different. Just wanted you to be prepared so you wouldn't be surprised.

Smokers tend to have a higher rate of bladder cancer, people who work in chemicals and then some just get it. I was never a smoker and I never worked with chemicals, but I did color my hair for 20 years with dark brown hair color and I've been told that could be a factor.

And I'm with everyone else. Don't be afraid to vent or ask questions here. This is the place for it. Wish I had know about this place the first time I went through this.
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9 years 8 months ago #46701 by melmac95
Replied by melmac95 on topic Just curios if this could mean more..
Ok. Surgery is done. Dr said tumor appears superficial. . What does this mean ?

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9 years 8 months ago - 9 years 5 months ago #46687 by Nicke
Replied by Nicke on topic Just curios if this could mean more..
Chaterine, Please do not apologize for being a woman!

This is my experience as a man to the catheter thing.

I had three TURBs last year. All of them as day surgery. First one was performed in the morning. I woke up at 11 pm with a catheter. After half a hour they removed it. With a lot of pain I was able to pee and could go home. Second time where about the same, but they had already removed the catheter at the time I woke up.

Third time was different. I was not able to pee when I woke up and was sent home with a catheter. I went back the next morning and had it removed but was not able to pee. Then we decided that I should keep it over the weekend (4-5 days). It is quite okey to have a catheter. I went to work with it and did most of the things I would have done without it. You can attach the bag to the leg. One advantage was that I didn´t have to get up for peeing in the night. I could get a really long sleep. After the weekend I got the catheter removed and was able to pee again. After a few days a got a really heavy UTI, and had to be on antibiotics for two weeks.

Some advice: Keep things clean and desinfected. Be aware of any sign of UTI. At time for removal, tell your husband to take some pain killers one hour before, and do not go home before your husband is able to pee.

Niklas

12-12 Diagnosis
13-1 Turb TAG1
13-5 Turb Ta low grade, multiple
13-10 Turb TaG2, multiple
13-11 Mitomycin 8 weeks + 6 month
15-01 Turb
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