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Neo bladders in women

5 years 3 months ago #46563 by Mirpurlady
I'm a 55 year-old woman who was just diagnosed with BC 5 weeks ago, and had a cystectomy overseas where I lived. That showed muscle-invasive squamous cell BC, so we returned to the States for surgery. A friend got me in touch with a good doctor at USC Keck and last Wednesday just had a hysterectomy and had my bladder removed, and had a Neo Bladder put in. Surgery went really well, they didn't have to remove much of the ureters, lymph nodes, etc., because it didn't look like the cancer had spread. Discharged me in 3 days (!) I was surprised by that, but they said all my numbers were great and I was doing well. I was worse for 2 days after they discharged me - no energy, but better today (Day 6 after surgery). As others have written, I too, was an "anomaly." - younger, not obese, non-smoker, teach aerobics, etc. I did have quite a few a-symptomatic urinary tract infections that I found out about accidentally over the years, so maybe I had them more regularly than I realized. It seems to be a contributing factor. I've also been to Egypt twice, though briefly, and only briefly swam in the Mediterranean, so that seems unlikely to be a factor. Who knows why these things come so unexpectedly! Anyway, I was distressed to hear several contributors say that Neobladders don't seem to be successful in women. As I'm flat on my back with one in my belly now, it would be good to hear from any women who've had experience with them. I was told I was a good candidate for a successful Neobladder, but I do know it will be a lot of work ahead. Thoughts? Any thoughts on how much time I should give myself to adjust before I return to a third-world country?

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