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My Father

4 years 5 months ago #46488 by tammy9462001
Thank you George. I really needed to hear that. He and I made dinner together and he is out driving his 1940 Ford Coupe. :) He is an awesome guy and I am going to be there for him every step of the way as will my son and husband. It is great to have folks to talk to about this.

Tammie

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4 years 5 months ago #46487 by Alan
George,

I love your insights! You lift me up!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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4 years 5 months ago #46483 by GKLINE
Well,
Let's not talk about dying. Let's talk about living.
You are now part of the Team.
Make sure your dad starts talking to you about every aspect of this disease and treatment.
He will need you
For a scribe to write everything down at Dr. Visits
For a shoulder..... No one is THAT strong to be alone at this time
Sometimes for a kick in the pants..... The patient is sometimes an ass

You will be less of a daughter and more as equals in this fight.

It's ok to be scared.. But be positive too. Attitude plays a big part in kicking this thing.

And another thing....... Use us for everything. We have been thru this too and we know how you feel. We were scared and alone and needed a shoulder. We'll try to help any way we can

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]
The following user(s) said Thank You: tammy9462001

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4 years 5 months ago #46478 by tammy9462001
Thank you so much. I spoke to his Oncologist's nurse practitioner at mayo today and she clarified some things. He has a T3 N1 tumor. He also has a tumor in the area of his vocal cords. They are wanting to do chemo and then wait and see if they will remove the bladder. I am trying to keep a good attitude for him. He went and worked a while today and came to dinner at my house. He told me tonight he does not want to die but he has accepted the possibility. He is an amazing guy.

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4 years 5 months ago #46477 by CatherineH
I'm so sorry to hear of your father's diagnosis. Alan is correct in saying he is at one of the best hospitals for treatment. I hope his scan on the 9th shows the best possible outcome as far as any further spread. I am glad you found our forum for moral support as well as information that has been gained by members here as we have navigated through our own diagnosis.

Please feel free to come here whenever you're feeling especially worried, or just need to talk it out. My condolences on the loss of your Mom as well.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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4 years 5 months ago #46469 by Alan
It sounds like the pathology report says stage 2 (invasive), 3 (near the edge of the bladder wall) or even stage 4 (possible metasis). Any of those suggest a cystectomy. Sounds like your Dad doesn't want you to worry which looking from his perspective it might even be the correct thing to say. It is still OK for you to worry! One thing for sure, be there for him and help cut through the clutter with the doctors. That way you both will pick the right path assuming you get enough information! Keep a good attitude-he will need it from you and as stated earlier, there are lots of survivors here! I am linking a wonderful article on possible diversions he may face: http://my.clevelandclinic.org/services/urinary_reconstruction_and_diversion/hic_urinary_reconstruction_and_diversion.aspx

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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