What to Expect?

Hello Sara Anne.

Thank you for the info.

As I said, this is all new and seemingly out of nowhere. I just got the pathology report and recommendation yesterday. I started seeking info on BCG this morning and happened across your forum. I'll be sure to look around.

Again, thank you.

Cog

Thank you for your reply George.

It's chemo, and I understand 'tired and run down' is relative, but I thought I'd seek info about experiences from patients rather than just from the docs.

I'm not even sure I can join the BCG club yet. I need to talk to the pulmonary folks too. I deal with the VA. My experience has been that they have to be pushed hard to take a wholistic approach. Getting 2 different clinics to talk and coordinate, within a reasonable timeframe, is a great feat in itself.

With my COPD as advanced as it is, invasive surgery is not a viable option.

In terms of chemo - I can't handle any more tired and run down. It's all I can do to get up and stay on my feet for a few minutes at a time now. At this point, the only thing that gets me out of the chair is a 90 lb. Rott-n-Lab named Lucy. Tending to her is what keeps me going. The 2 walks each day keep getting shorter but we both need them. I may gasp the entire time but I push myself and do it for her. The rest of her exercise now comes from chasing me on a golf cart.

I'm willing to try BCG but if it knocks me off my feet, it's not an option. This dog is my will and strength. When I reach the point I have to give her up because I can't properly care for her, I'm done.

Thanx for hearing me out.

Hello Cog
Sorry to see you here. But you couldn't have found a better place to ask questions and sound off.
Tired and Run down is going to be your friend for a while. I think with COPD you are already a little of that now. But BGC can get to you as the program progresses. You need to take as much time for building yourself up as you can. Rest is important but so is getting up and walking to give your body a boos of energy.

At least you are in the BCG club. If they were to say you needed Surgery to remove your bladder the COPD would make that a tough option with only 17% lung capacity.

George

This is all new to me. Just had a large tumor removed from my bladder. T1HG. Now they are recommending BCG. I'm in the process of moving down to near sea level so it will be a few weeks before I can get in to see new VA docs. Besides this cancer, I also have Stage IV COPD so will also consult with Pulmonary. With a FEV1 (lung volume) of 17%, I'm barely on my feet now. What can I expect in terms of the more common side effects? If tired and run down is one of them, this may be more difficult than they are letting on.